Good evening, my mother was diagnosed on November 1st with endometrial cancer, poorly differentiated serous type, p53 positive and p16 positive with the mass more than 50%, after several tests they found that it seems to be confined to the uterus and not metastasized and on December 6th she was operated.
I have terrible doubts for the following reasons:
we were not told what type of adjuvant therapy will be done, they were talking about radiotherapy and in any case we have to wait for the histological exam.
I searched online and the recommended treatment for this type of tumor is chemotherapy and radiotherapy (portec-3 study).
The problem is that initially they said that the histological exam will be ready after 30 days, yesterday I went to the hospital to see if it was possible to hurry in some way and now they told me that it will take 45 days because of the holidays.
I am desperate because I should wait 45 days for the results and then wait for the oncologists to meet and decide which treatment, in a context in which adjuvant treatment should be started as soon as possible depending on the type of tumor (my mother had a record recovery and after 2 weeks she is already in shape)
I signed up to have support, to understand how to move (even through legal channels or otherwise to try to speed things up) because it creates anguish in me that my mother's aggressive tumor (less than 10% of the serous type on all types of tumors that cause 50% of total deaths) is treated so lightly.
Hi Light99
Welcome to the Womb group.
I am sorry to hear of your mother's diagnosis of endometrial cancer. I hope that she is recovering ok from the surgery.
I can understand your concern regarding adjuvant treatment and around the wait for results.
I also had a grade 3 endometrial cancer and more than 50% into the muscle of the womb. (stage 1b) I was told before surgery that they felt it was contained.
My adjuvant treatment was chemotherapy and that was follow up with external beam radiotherapy. If you click on my name my profile will come up with the timings of treatment.
My post op results were delayed somewhat due to the long Easter weekend.
There may be differences between hospitals but during my chemotherapy consents appointment I was told that adjuvant treatment could not be started until I was 6 weeks post op. Although I was doing most things by then, I was told that I needed time to heal on the inside. With my radiotherapy I had a planning scan and saw the radiotherapists before my last cycle of chemotherapy. There was then a wait of around 3 weeks before it started- but this coincided with the end of chemo. The 3 weeks was due to the treatment plan being put together.
When deciding on what further treatment is needed they will look in detail at the post op results. I knew from the day of my results what further treatment would be needed. The post op results go to the MDT. I was phoned by my surgeon. I then was called in for an appointment to sort out the details. Perhaps you could ask for a telephone call as soon as the results are in.
I do understand why you are anxious for your Mother to have her treatment as soon as she can. I hope that her results come back earlier than expected and that you can both find out what her next steps will be.
In the meantime, perhaps consider giving the Support Line a call and asking one of the nurses about this.
Jane
