Hysterectomy next week. Very anxious.

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Hi everyone. Just reaching out as I’m getting terribly anxious about my hysterectomy next week. I’m already booked in even though full histology isn’t yet back as my oncologist could see what he needed on MRI, CT and Vaginal ultrasound. Have also now had a hysteroscopy under GA and will see my consultant again next week before the op to tell me what type/grade etc. I’m so scared. Even without full histology I’m booked in for a ‘radical hysterectomy’ plus tubes and ovaries to be removed. I had breast cancer 8 years ago for which I went through surgery, chemo and radiotherapy so this feels like such a knock back. I’m trying to keep positive but my mind keeps spiralling, particularly if I need to have chemo again. I know I’ve just got to hold tight and wait to see my consultant (the MDT meeting is tomorrow when they will discuss my case). Hysteroscopy notes state ‘very abnormal cavity’ with signs of masses and pyometra. Any advice would be greatly appreciated. I’m very glad to have found this forum. I’m 57 and a mother of 4 adult children. 

  • Also, just to say I’ve been on Tamoxifen for several years and would be interested to know if any other ladies have got this connection. It feels very cruel that a drug I was taking to help prevent breast cancer recurrence may be a contributing factor. 

  • Hi I am 59 and also had bilateral breast cancer been on tamoxifen for the past 7 years I now have grade 3 rare cancer waiting my operation in the next four weeks I am convinced that the tamoxifen has played some part in it hope all goes well xx

  • Thanks Alibongo. Have you now stopped taking Tamoxifen? I have been told to stop immediately. I guess after surgery I will be advised whether to go back on it or to switch to Letrozole or similar. Really hope your op goes well. The waiting is unbearable. X

  • Was didn't want  to take it I rang the breast unit and was told to take it so I asked the consultant and she said its up to me it won't make any difference now but if I decide to stop it which I have done from last night consultant said to take it again after my treatment xx

  • That’s good to know. X