Bleeding after radiotherapy

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Hi All,

I finished cisplatin chemotherapy and 35 sessions of external radiotherapy on June 14th, 2024, for recurrent womb cancer and a hysterectomy in December 2022. I've had pretty continuous light bleeding since finishing. A few weeks ago, I had heavier bleeding, like a period but no clots. 

Has anyone else experienced this?

I've been back in touch with CNS and had an MRI last week and results next week. Fingers crossed

  • Hi  

    I'm not a member of this group but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

    Hope the results pinpoint what's causing the bleeding.

    ((hugs))

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  • Hi Lee

    Am sorry to hear that you have had some bleeding since the treatment for your recurrence. 

    I hope you have managed to get some reassurance from your CNS. After my radiotherapy I was warned that some ladies may get a bit of bleeding or discharge after treatment and was told I could always email the radiotherapists if I had any questions. 

    I hope that your MRI results come back and are reassuring. In the meantime we are here if you need anything.

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Thanks Jane, I had a call from my consultant to say that the MRI was clear. I still have to attend an appointment tomorrow due to the bleeding but at least it's not a relapse. 

    Thanks for replying

  • Update

    Had some biopsies taken under general anesthetic 12 days ago. Results show that the cancer is back. No matter what stage of treatment, healing or recovery you are in. If there is any bleeding, get it checked. I had to press upon my oncologist that I didn't feel right, and I'm so glad I did

  • Hi  

    I am really sorry to read that your cancer is back but you give good advice to get any bleeding checked. My cancer was cervical, and I had no symptoms at all of pain or bleeding so it was a shock when mine recurred 9 months after chemoradiotherapy.

    I read your updated bio, and just wanted to say that I had a total pelvic exenteration with everything removed and  two stomas formed, so if this is what will be the case for you after you get your petscan results, I’d be happy to share my experience and answer any questions if I can. My only other option would have been palliative chemo if surgery had not been possible,

    What I will add is that I had my surgery in March 2020 with no further recurrence, so although it is a very tough slog it can give very good results for cancer which has not spread out of the pelvis. 

    I hope your petscan results will allow the surgery to go ahead and that you’ll let us know how you’re getting on. 

    Sarah xx


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  • Hi Lee75

    I am sorry to hear that your cancer is back and it is good advice to get anything checked out. I wish you well for your treatment.

    In the meantime, we are here if you need us.

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Sarah,

    Thanks so much, I will definitely be in touch as I'm not sure which scares me the most at the moment, the surgery or palliative chemotherapy. Thanks for taking the time to reply, it is really appreciated. If it wasn't for the support from the people in this forum, I don't know how I would have coped. Xx

  • Jane,

    As always, you are amazing support. Thanks for the kind message, it makes me feel a little less lonely. I have amazing family and friends, buy this forum gives something that they can't. 

  • Hi  

    My consultant knew I would be keen on surgery, if it were possible, to give me the best chance so we didn’t have any discussion about the palliative chemotherapy-but I was aware that was the only option for me at the time without surgery, and we would have had that discussion after my petscan.  

    I had been having relentless pain for some time as my cancer had become very aggressive following a failed attempt at a salvage hysterectomy which couldn’t proceed because of my radiation damage-the cancer spread quickly over my womb and bladder and my cervical tumour basically quadrupled in size to 5cm. Time was of the essence in my case. 

    The thought of the magnitude of the surgery was very frightening, and probably more for me than I wanted to think about! So I just tried to focus on the potential result that could be achieved and  blocked the process to get there out of my mind.  That was just my way of dealing with things but I know that’s not the approach for everyone, and I do recall one lady refusing the surgery even though it would have been possible for them. 

    My surgeons (I had 3) achieved very good margins, so I appreciate I was very fortunate to have all my cancer successfully removed. I’ve never once regretted going through it, even though it’s life changing, as it gave me a second chance-it was absolutely worth it.

    Sarah xx


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