Anxious about biopsy results

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Hi!

This is my first post, and feeling like a bit of a fraud because I don't have a diagnosis yet but my brain is spiralling...

I was placed on cancer pathway August 12th after a TV US showed thickened endometrium of 43mm amongst other symptoms of heavy flooding, pelvic pain and prolonged bleeding.

I had a hysteroscopy on August 30th, Lining was still 42mm after 60 days of bleeding and had a cervical polyp and a 2cm uterine polyp removed.

On Wednesday 11th September I received a call telling me I needed to come in to discuss biopsy results, an appointment was made for Thursday 19th and a notification came through on my MFT (Manchester foundation trust) confirming my appointment with an oncologist.... Queue the panic! (I received an information leaflet about what could happen on the day and the information that I can bring a family member or friend along with me.

On Thursday 12th I received another phonecall, informing me the consultant who carried out the hysteroscopy would like me to come in to discuss results from the hysteroscopy but that he had no available appointments within the next week so would like me to come down to an emergency gynaecology unit on wednesday 18th at whatever time is best for me as he would make time to see me when i arrived (no mention of bringing support with me).. i explained id already had an appointment made for the day after and I was told it was to discuss something else.

I then received another phonecall the next day informing me they were cancelling the Thursday appointment because the consultant who performed the hysteroscopy will go through it all with me instead of me having 2 appointments.

I'm now so confused and anxious, I don't know if it's a good thing that I'm now not seeing the oncologist or whether it doesn't make a difference, and I'm left trying to decipher every bit of information (such as not being told to bring someone with me) 

I feel like because the appointment was made with oncology first it's not a good sign but I did see an oncologist at the start of my cancer pathway referral who ordered the hysteroscopy. 

Sorry for the extra long first post of information dumping but my brain is spiralling and any input would be really appreciated!

  • Hi Steph1407

    Welcome to the Womb group.

    I can understand you feeling anxious about your biopsy results and I remember going over and over it all in my head at the time. It is very natural to feel anxious and panicky.

    What I would say is that to go one the 2week pathway is very normal with a slightly thickened endometrium and with bleeding and the polyps. They always try and rule out the most serious potential causes first and that is why they do all the testing. At my hospital (and it does seem common) that any one with symptoms that may in some people possibly mean cancer - they are put on the 2 week referral and under oncology dept. 

    I remember my first letter coming with oncology on it and panicking. 

    Also it is not unusual that the consultant who did the hysteroscopy wants to be the one to see you. To have one appointment to go through everything also does not sound unusual and also better to get everything dealt with in one appointment- both for you and with other people who may also need to be seen. 

    I was never asked about bringing someone with me for any results and I would not necessarily read anything into it. When I had my biopsy done I was asked how I would like to be told my results and opted for a phone call from one of the nursing staff initially. When you had the hysteroscopy did they ask how you would like to be told the result? I think the only time it was mentioned about having someone with me was when I needed to go home after the biopsy (in case I felt unwell) or after the surgery. 

    In 4 days you will hopefully have some reassurance about what is causing your symptoms and possibly an idea of a treatment plan. Only the biopsy results will show whether there is any cancer present. Something is causing your symptoms and it sounds normal to have a follow up appointment, It may well be that it is to discuss treatment or monitoring of some more minor condition. If it does turn out to be cancer then it is best to know and get a plan for treatment. We are here to support you either way.

    Try to keep busy and focus on the fact that you have done the right thing in getting checked. In the meantime if talking things through would help, then please do give the Support Line a call. The details are below. 

    Good Luck and let us know how you get on at your appointment. 

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Thank you for the reply. I wasn't asked how I would like the results but he told me he would write to me with the results, and then obviously I got a phonecall to come in to discuss. I'm just panicking. 

    Of all the information I've found I've only once seen someone with a thickness similar to mine as 43mm is quite thick so I believe. 

    The waiting is just so hard, as I'm sure everyone agrees :/ 

  • I can understand you worrying and the waiting is hard. 

    I am sorry but I read it as 4.33 first time. Apologies- I was on my phone.

    43mm would be considered to be thicker than usual. However hyperplasia can have other causes. Sometimes hyperplasia it self can need some further treatment. I wish you well for Thursday and hope you get some answers. 

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi Steph that sounds so complicated, if it was me I would say can they let me know over the phone, that’s me as I couldn’t cope waiting and they told me during hysteroscopy that it seemed suspicious of cancer and that would call me, so I rang a few days later to ask the dr what she meant and got a call back on my answer phone to ring the nurse, when I rang back it was an oncology nurse and I said why did you call me she said we are looking out for your results ! I was very scared in the end it did turn out to be cancer and I was at stepping hill so went to Christie’s who were fab as noticed you are in manchester xx I hope you are ok and let us know how you get on 

    m

  • Thank you for the reply! Yeh my mind is boggled with all the different things going on. I had my procedure at saint Mary's but now need to go to wythenshaw on Wednesday as that's where he's doing the emergency gynaecology unit. The waiting is just horrible isn't it!

    I'm sorry you didn't get good news and hoping you're well now!

  • Thank you yes I am feeling fine now touch wood and whistle xxx

    st Mary’s Is where they said I would have gone if I lived more in the north but went to Christie’s as I live in the south as st Mary’s and Christies both perform robotic surgery so for them to send you to Wythenshawe I’m hoping for you that’s positive xx like I say I can’t cope waiting and would be ringing xx

  • Yeh, wythenshaw and saint Mary's share a gynaecology unit. So the consultant I'm seeing at wythenshaw did my hysteroscopy at saint Mary's but had no appointments available so asked me to come to the emergency gynaecology unit where he is lead consultant that day. I don't know what to think of it all to be honest. My brain contradicts itself constantly