3 large fibroids with abnormalities

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Hi, this is a bit of a long story so apologies. 

A few months ago I had an MRI of my lower back for back pain. They mentioned in the report they saw a large 8cm by 9cm fibroid and I was referred to gynaecology. I then had an ultrasound where they actually found 2 smaller fibroids of around 5cm and decided that wasn't causing the back pain but decided to do a pelvic MRI just to check what the first MRI report was referring to (there was only a report no images, so they thought maybe they'd just measured my womb).

I just had the results back today and I am shocked that instead of one large fibroid or even the two smaller ones. I actually have three large fibroids (ranging from 7 to 10cm) and she mentioned that they showed degeneration and abnormalities? I've been scheduled for keyhole surgery to remove them in just a few weeks and she said they will biopsy them after the surgery.

But I think maybe I didn't ask enough questions because now I'm just confused. They're all on the outside of my womb but then everything I'm reading online says if it does turn out to be cancerous that I shouldn't be having key hole because chopping them Jo for lack of a better term can make it spread. 

I guess I'm just wondering if anyone has had anything similar? 

I literally have no other symptoms other than back pain and constipation. I wasn't expecting to have her say any of that. I just thought she'd say the ultrasound was right and the first MRI was a mistake. I'm 33 if that's of any interest and very lucky that I have private health care with work.

  • Hi Hallie90

    Welcome to the womb group.

    I am sorry to hear that you have been diagnosed with fibroids after having some back pain.

    I can understand your worries and that you need some answers. Are you able to make an appointment with your GP or practice nurse to talk things through? Or perhaps give the Support Line a call tomorrow and have a chat with one of the nurses. 

    Fibroids are non cancerous growths. I will pop a link with some info.

    Fibroids - Leeds Teaching Hospitals NHS Trust (leedsth.nhs.uk)

    It is normal after any surgery for anything removed to go to pathology and to be tested to rule out cancer. 

    I can understand you being worried about the surgery but I am sure talking things through would give some reassurance. I have found some information which may be helpful.

    myomectomy.pdf (royalberkshire.nhs.uk)

    I have not had fibroids but did have endometrial cancer and my symptoms were heavy bleeding- and post menopausal bleeding seems to be the first sign for many. And you have had the scan and testing, so hopefully it will turn out as expected to be fibroids. 

    From what I understand degeneration/abnormal fibroids is where they are starting to break down but this is something you could ask about. 

    Hope this helps a bit- but I do suggest talking things through with someone who is medically trained. My practice nurse was good at explaining things. 

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Welcome to the group - I do feel for you but it’s really important that you stop googling as it’s too easy to scare yourself to death with irrelevant, out of date or even plain false information. I suggest you contact your consultant's secretary and ask if you can send in some questions or have a phone conversation with your consultant.