Diagnosed last Friday

I am so sorry to hear that you have been diagnosed with Womb cancer. Sadly cancer doesn't arrive without disruption and turmoil. The timing isn't the best, however as someone who had the exact diagnosis as you is now fit and well, having had a total hysterectomy in January.

I am 61 and like you wanted to have children and tried for them. By the time my hysterectomy happened my child bearing days were well gone, But, I still felt all the emotions that you are feeling about losing my womb. It was real grief and you are most certainly allowed to feel this and give your self space to come to terms with it. There is a life after Cancer, I feel like I have been rebooted and make the most of everything and see life with fresh eyes.

I hope you can get plenty of exercise and eat healthily in preparation for your operation. Limiting or cutting alcohol out now will help with the healing later. 

Best wishes and remember you are very much not on your own. MacMillian is the best place for you to let your feelings out and to get advice. I see them as Superheroes.

Rozanna x

Hi Sesheta

Welcome to the Online Community and the Womb group.

I am sorry to hear of your diagnosis of womb cancer and I remember what a worrying time it can be.

I am glad you have found us and please do not be afraid to ask us anything, there are a lovely bunch of ladies on here who will want to offer you support. 

I understand that your autism and ADHD may make coping with the change difficult so please do give the Support Line a call, if talking things through would help.

I found my emotions were all over the place when I had my diagnosis so you are most definitely not alone in feeling the way you do. 

It must be disappointing that you have to postpone your teacher training start but its good that you do not have to wait too long to have the surgery. It really is best to get it sorted while you are at an early stage. I found my hysterectomy straightforward, I had very little pain and recovered quickly from the surgery. 

I will pop a link here with some information that I found helpful.

Womb cancer booklet | Macmillan Cancer Support

I wish you well for your surgery and if there is anything you need in the meantime- you know where we are

Jane

I do feel for you at this difficult time. I found after my diagnosis that a lot of feelings around my infertility resurfaced from years ago. I found it helped me to remember that it's natural to be shocked by a cancer diagnosis and in addition upsetting to have past sadness resurface with the complicated feelings that go with it.  I'm learning to reply "sadly no" when asked by medical professionals if I have children as it seems to help frame the conversation. There is a lot to adjust to but this forum is a great place for support with a lovely community of people on tour side. 

On YOUR side. 

Thank you everyone. It really does mean a lot to know I'm not alone in this. I do have a lot of support around me but I tend to retreat into my head far too much at times like this. I'm also experiencing horrible menopause symptoms since going cold turkey from my hrt when all this started. Hot flashes, joint pains, gut problems, headaches and dizziness I also have weird period type pains that I'm paranoid is the cancer but it can't be surely? Not yet. 

I am sorry to hear your diagnosis I to had stage 1A grade 1, at first before I new I had cancer I would bleed heavy clots into my fifties thinking it was stress related but it wasn't then I was diagnosed at 59 with 1A grade 1 womb cancer, my bleeding started to be more persistent with very large clots which at one time lasted I think nearly six months but that really progressed a year into my diagnosis although I was on hormone treatment which was progesterone as estrogen helps feed the cancer i was on at first 1 tablet x 3 a day but ended up with 5 tablets X3 a day (15) which helps stop the bleeding although I still had stringy type clots when I peed but I could live with that as for period pain I had always had this pain in my right ovary during period pain and that had always remained, so yes it could be due to the cancer as the cancer is a very slow growing one (as I was informed by my consultant) and I was also told the bleeding was due to the cancer and fibroids. But everyone is different apart from your head being all over the place and having this feeling of loss knowing your womb and ovaries and the rest will be taken away god I am 61 now and I am not ashamed to admit although I am 61 and had my operation 12 /13 weeks ago a pence of loss not only regarding your womb but also your women hood, my husband says don't be daft your still as sexy as ever and I know he is saying the truth in his eyes but at the moment I feel half a women and do you know what it's ok to feel different things at the moment, you and hubby have delt with not having children and now getting both your heads around cancer and major surgery and recovery not forgetting let's face it if your sex life will ever be the same and on that front I can say it will with talking to each other about everything and how it has affected everything around you. Always talk never keep anything inside your head that is negative because from experience these thoughts tend to blow up but the actual fact the outcome is so far different for both of you.

Keep in touch with this wonderful group of brave courageous women who have or going through this whole experience and with each experience really helps put things into perspective. I no I have had a wealth of encouragement if that's the correct word from these ladies and to be honest help me enormously before and certainly after my operation.