Need a little advice

Hi Eliza04

We spoke before and am so very sorry to learn that your mum was unable to have the surgery that you were all hoping she would have. This time is very much going to be one of difficult and at times conflicting emotions. It is good to hear that you mother has responded well to the transfusions and is now eating better. I hope you are able to make the most of this improvement to enjoy time together. Take every little win as a win, and the setbacks, well we learn to manage those somehow though it isn't easy.

There are links to how to manage all that on the main Macmillan site – hoping one of the community champions can pop them in for you as I'm really tight for time today and not familiar with everything. But I saw you hadn't yet had a reply and wanted to suggest you join the Carers Forum also

 Carers only forum 

And if you have not already done so, you may wish to get in touch with Maggie charity as they have resources for friends and family, plus a helpline. Maggies can help with managing conflicting emotions as are all too natural when you find yourself in the place that you do.

https://www.maggies.org

Palliative can mean different things in different contexts.  I'm not sure what support you have in place already with your mum. I'm not the best placed to advise here, but had to reach out with a hug.

Thinking of you at this difficult time. Rose xx

Thankyou so much for replying and helpful advice x

Hello Eliza04

I am sorry to hear of Mum's womb cancer. To be told that it is not curable is really difficult and I feel for you all. I am sorry that the surgery was not a possibility but I am glad that some treatment is being offered that could help. I also had chemo- mine was carboplatin and paclitaxel and although not easy at times, it was doable. There can be side effects but on the whole these were managed by medication. If there is anything Mum would like to know about chemo, please do ask.

I am sorry that mum's haemoglobin levels have dropped- this happened with me and it can make you feel pretty rubbish. I found that the blood transfusion did help though. 

With palliative treatment the idea is to try to control any cancer and reduce symptoms for Mum. Have they discussed which type and regime Mum will be offered. Mine was a 21 day cycle- so it was one day in hospital for the day and then 20 days at home. I found it manageable. 

I am glad to hear Mum is eating better now and anything like that will help her be as well as she can for her chemo. With palliative care Mum should have a team of nurses who will be able to offer support to you both. They will be your first port of call with any questions and worries that you have. It is important to have support for you as well as it is not easy to have someone close to you going through this. 

Rosalinda has given some links which you might find helpful and I will pop a few more. Do not feel you have to look at them all at once- but they will be there if you need them. Also please do give the Support Line a call if you feel it would help- one of the nurses would be able to answer any more medical questions that you may have. They would also be able to take a look to see if there is any local support in your area. 

Advanced cancer booklet | Macmillan Cancer Support

Womb cancer booklet | Macmillan Cancer Support

You are welcome to post in the Womb group as much as you need to but I thought I would draw your attention to another group that may in time be helpful.

Supporting someone with incurable cancer forum | Macmillan Online Community

The link below is some general info that may be useful

Supporting someone with cancer | Macmillan Cancer Support

I hope this helps a bit but if there is anything you need, please do ask.

I wish your Mum well with her treatment and I hope that it can help.

Jane

Thankyou so much for your feedback and support much appreciated x