Hi , I’ve been under Gynae for a few months now .
my back story is I was diagnosed with stage 3 bowel cancer and had a resection 3 years ago . Before my diagnosis my periods were awful - heavy painful clots etc but always regular . Because of this I was referred to Gynae who put a coil in and took a biopsy . Biopsy was reported as normal .i bled every day whilst the coil was in and had pain . Sent for ultrasound and was told I had an ovarian cyst . Another few weeks later we decided to remove the coil . All normal for a few days then extreme bleeding and clotting that I ended up in A and E . Gynae then put me on Provea to help with the blood flow - that didn’t work initially but then I did indeed stop . During that time I had another ultrasound . I’ve now had no bleeding since 8th April , I thought this was great ( I’m 52 ) I had my follow up this week and consultant obviously asked how things were luckily I had a timeline of events since the coil was removed . I explained I was suprised I’d had no bleeding since I stopped the provea . She then looked at the ultrasound report and stated oh the lining is thicker than it should be and you also have adenomyosis. She said I’ll need to do another biopsy and get you a hysteroscopy organised . Cancer was mentioned several times . Not I’ll wait and see what biopsy says . She there and then also referred me for a hysterectomy and said if it is cancer than obviously you will follow a different pathway !
I didn’t take offence to the way she spoke ( I know some might of ) I prefer straight talking particularly as I’m still not clear yet from the bowel side of things .
I’m beginning to think that I should of been called in a little earlier once that ultrasound report was sent but that’s my only criticism
sorry it’s so long ….. Has anyone else been told they have Adenomyosis? Alongside a cancer diagnosis? Or infact it was cancer and not Adenomyosis?
Hello Takayasu
Welcome to the Womb group. I am sorry to hear of your previous bowel cancer and that you are now having investigations for gynae symptoms.
With your womb lining being thicker than they would like it to be, it would normally be the next step to refer you for a biopsy/hysteroscopy. A thickened lining can be due to various factors and cancer is only one of them- but they would normally want to rule this out first. A thickened lining would suggest a need for a biopsy, whether or not adenomyosis was present.
Adenomyosis is not something I have experienced but hopefully someone who has had a similar diagnosis will come forward. In the meantime I will pop a link below with some more info.
Adenomyosis | North Bristol NHS Trust (nbt.nhs.uk)
It must have been concerning to be told you were being referred for a hysterectomy, without yet knowing the full facts but I suppose in a way it is good to get the ball rolling in case it is needed.
I hope that you do not have to wait too long to have your hysteroscopy and that it brings some clear answers as to what is going on and what the next steps may be.
If chatting things through would help then please do consider giving the Support Line a call. The number is below.
Jane
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