Hi All,
I’m 38 years old and I have Lynch syndrome.
I have been diagnosed with stage 1A Endometrial cancer back in April. I have been taking Provera 400mg for nearly a month and swapped to Mirena coil since a month. I have been bleeding every day and in pain every day, but mainly in the evening. Has anybody experienced this?
I have been offered a conservative approach, as well as total hysterectomy (womb, ovaries, tubes) due to my syndrome with or without embryos freezing. I have excluded the conservative approach because I’m too scared of what can happen during and after a possible pregnancy, so I’m leaning towards the embryos freezing and then the surgery. But everything is so slow, we are nearly at the end of June and I still don’t have dates…I don’t know if I should be worrying and also very worried about the bleeding and pain due to the coil…it seems is normal and to keep monitoring. I really hope things will not progress during this waiting and that of course I’m making the right decision. Anybody with similar scenario? Thanks and good luck all 
Hi Sabry
I am sorry to hear of your diagnosis of stage 1A Endometrial cancer.
I can understand your worries about making decisions re treatment. I was lucky in the fact that when I was diagnosed I was older than you and already a Mum. Perhaps it would help to speak with one of the nurses on the Support Line who can give you some more information about your options. The number is below.
With regard to the bleeding and pain you are experiencing I would suggest that you contact your CNS or doctor and get some reassurance. It may well be due to the treatment and something that will settle however I am sure it must be concerning for you.
I am not sure about Lynch really as it is not something that has affected me, but I do know there are ladies on here with Lynch and hopefully they may be able to offer support.
Jane
