My experience

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I am coming up to week 4 on Friday 21 2024 after my surgery on the 24th May 2024 which turned out to be complex taking nearly five hours I ended up with 4 portals and one big cut across my tummy with 20+ staples in the that and 10 all together on the portals my womb was to large to come through my virginia plus other issue apparently I was just short of needing a blood transfusion, so I need to get my full blood count checked for the third time this week.

I also woke up in recovery begging for help with excruciating pain in my shoulders especially my right one could not move them for weeks I could hardly cut food up and lift it to my mouth went\ for x-rays need to get steroids put into both.

As for post operative total nightmare my shoulders and infections plus I couldn't get my staples out on time this made them red and angry ended up with my largest cut weeping at one side putting dressing on everyday but I am glad the bleeding is getting less so next week I suspect no more dressings.

I phoned the Edinburgh Cancer Hub and left a message for my elusive CNS (diagnosed May 2022 2 years I have only herd from her 3 times with these 2 years the last time she phoned was May 28th 2024 asking why I was not still in hospital as I was to be in until 29th May 2024, anyway as I said left a message asking for her to contact me after Thursday 20th June 2024 as the MDT meets on the Thursday so she should have information surly on the Friday 2024 on what's happening and when my appointment should be, to be honest my mind is occupied about my biopsy results in fact i might go to Maggie's in Coatbridge and ask there advice on what to ask.

All I can say to you is GOOD LUCK and let's us know how it goes remember the women on this site are brilliant with advice and support XXX

WILMA 

  • Hi  

    It does sound like you've been through a lot and I hope you get your questions answered when the CNS phones you back after the MDT this week.

    ((hugs))

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  • After my phone call to the cancer hub the CNS phoned the following day to say " she hasn't heard anything and no sign from the lab" I asked her about chasing it up but she said they wait until the lab contact them, I did ask when the consultant goes on holiday which is 6th July 24 so I was worried I would have to wait 8 weeks but I got a phonecall on the Friday from the Secretary so my biopsy results will be 27th June 24

  • That's good news that you only have a couple of days before you get your results. I know what an anxious time waiting for results can be.

    x

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"