I had my hysterectomy on 15th may after being told my histology showed grade 1 1b cancer cells and that my womb lining was thick 16.2 which is why i was having bleeding after 5 years of no period due to me gone through menopause. My bleeding episodes started in september 2023 but i kept putting of getting it checked due to my husband health with his diabeties and also having phemonia for the 2nd time he okay now. Then the rush of xmas then other things happening then when i was going to get it checked my brother in law fell ill 2nd week in february so my free time was seeing him at hopsital dianoised with lung cancer and 8 brain tumours sadly he passed away on 6th march i had my imaging appointment on 5th april day after my brother in law funeral then my hystereocopy 15th april then 2 scan a ct and mri on 26th april and 27th april. On 1st may they hot me to come and see them and i was told i had grade 1 1b i was booked in to have a hsyerectomy on 15th may which was for my womb and tubes and ovaries removal. After what they told mw was a difficult operation i had laparospic one and went down at 11.30am but didnt wake till 4.20pm apparently my heart level was slow so they had to keep an eye on me to get it normal they gave me and injection. I was told they removed my cervix as well but dont know why as i disnt ask. I did ask if i would need chemo or radiotheareapy they said histology will need to examine the items and they said it could take weeks i also have to have follow up appointments my first one is on 24th july what do they do at these appointments i havent gone back to my work yet as still have back pain and problems with my bowels movements and due to my job intailing pulling open a 8foot heavy safe door open and cloaing at least 30 plus times a day so i know internally i have to be careful plus i also have overwhelming tiredness like i do something foe 15 minutes and then nees to rest and need a sleep every couple of hours as tiredness kicks in so badly does anyone else get this
Hello Debashmic
Welcome to the Online Community and the Womb group.
I am sorry to hear of your diagnosis of womb cancer. You have had an awful lot to deal with recently so I hope that we can be of some support to you.
I am sorry that you hysterectomy was a difficult one. It is normal for endometrial cancer for them to take away the womb, cervix, ovaries and fallopian tubes. They may have used the words total hysterectomy with bilateral oophrectomy. Sometimes the medical terminology can be confusing.
It is normal after the operation for the tissues they take away to be examined by the pathologists. They do this to confirm the stage and grade and also to get a bit more information. It is normal to wait a few weeks for these results. Mine took 3 1/2 weeks but it does vary between hospitals and by how busy they are. It is these results that they use to determine whether any further treatment is needed. They would normally discuss the results at a multi disciplinary team meeting and then make recommendations to you when you go in for your appointment.
I would imagine that you hopefully would get your post op results before the July appointment. The July appointment sounds as if it could be a check up appointment- to see how you are doing. If you need any further treatment I would think that you would be called in before then. My follow up appointments involve a chat, feeling my tummy and a quick internal exam.
I am not surprised that you have not gone back to work. I was signed off work initially for 12 weeks. Your job sounds a physical one and I am sure your Doctor would advise strongly that you don't go back yet. Lifting anything heavier than a light kettle can do harm while you are healing inside.
Tiredness is very normal and to be expected. You have had major surgery, and been through a cancer diagnosis. Also you have been dealing with illness in your family. It is important to rest as much as you can for the first 6 weeks at least.
I would suggest contacting your CNS about the back pain. it may be because you have been over doing it or maybe an expected part of the healing. I was lucky in that I didn't have much pain at all.
Your CNS should also be able to give you some advice and suggest medication for your bowels. A lot of ladies find that after the surgery they can be constipated for a while.
You have had so much to deal with and if you feel that chatting things through would help, then please do give the Support Line a call. The details are below.
Hope this helps a bit. If there is anything else you want to know or need, then please do ask.
Jane
