Just asking if anyone has had Dostarlimab? I started it in January, and due cycle 4 today, and all the info states that first 4 cycles are 3 weekly, then it goes 6 weekly.
Yesterday I had my pre cycle 4 telephone review, and the Consultant said she is giving me a cycle 5 in 3 weeks?? I did challenge her and say I was told I was now expecting it to go 6 weekly. She said who told you that?! Well the patient info leaflet did! She said it was her decision.
Having read every patient info leaflet on line; the Dostarlimab protocol via the company who makes it, and of course NICE guidance, every one says 4 cycles are 3 weekly then 6 weekly.
So cycle 5 is now in April 23rd, My cycle 6 is now planned for June 4th, my 30th wedding anniversary is that day and we will be in Yorkshire having planned it on my 6 week break!
I did ring CNS yesterday but of course it was a bank holiday.
Has anyone had this extra cycle out of protocol? I am tolerating it really well, but we'll stressed now!
