Hi.
Been on a roller coaster of diagnosis, referred for biopsies mid November, told beg of December Atypical hyperplasia as oncologist said team split 50/50 as to pre-cancer or established cancer.
MRI week later showed established cancer but told not metastatic told needed surgery to remove womb, cervical ovaries, fallopian tubes. Did pre-op assessment then met surgeon. Cancer re-staged to 1B.
Surgeon. explained everything calmly by diagram and said possibility it had spread to Lymph nodes as cancer had gone over their 2nd marker, will therefore take 4 of the Lymph nodes.
Surgery was mid January, and pathology showed microscopic cancer cells in one of the Lymph nodes only. Cancer Re-staged to 3C1 Cancer and 6 rounds of chemo recommended.
Now 7 weeks postvsurgery dont see Oncologist till Easter week.
Surgeon explained some people don't do Chemo etc as it was so microscopic in the Lymph node and others do full kitchen sink at it as not wanting Cancer back.
I don't want Cancer back, but have so many other complex diagnosis 34 in fact, Indont think my body can cope with Chemo ....
What advice do you have for me. Everyone has reiterated from the hsptl that it was a microscopic cell in the Lymph node and 2 years agonitvwoukd have gone undetected!
Waiting 11 weeks until I see Oncologist is a nightmare! Do I need Chemo, don't I need Chemo is it over the top for a single microscopic cell or absolutely necessary incase just one cell got away?
Thanks for your advice.
Hello Maxelyn
I had stage 1b grade 3 with LVSI. LVSI is where there are microscopic cancer cells have been found in the blood/lymphatic vessels leaving the womb. In time these could potentially spread to a lymph node or to other areas of the body in some people.
I had chemotherapy and radiotherapy because of this.
I was advised and also felt that it was better to do the treatment and hopefully make sure nothing got left behind. I felt it better to do the treatment sooner, rather than later when the cells could travel/become bigger/set up elsewhere. I felt it better to do the treatment at this time rather than risk a recurrence.
LVSI are microscopic cells but it only takes one to escape and potentially it could set up elsewhere.
Perhaps talk to your CNS so you have the full picture so you can make the best decision for you.
Good Luck ,whatever you decide. For me the right decision was to have treatment and I do not regret it.
I was scared when I was told I needed chemo and would have done anything to avoid it, but actually it was doable. There were side effects but on the whole these can be managed. I used scalp cooling to save my hair.
Jane
