Hi I just would like some advice as my head gone down the rabbit hole again.had a long prolonged bleed after coming off hrt last year had a scan my lining was 11mm and possible polyp.bleeding stopped had hysteroscopy no abnormalities biopsy clear.Then after 5mths start an horrendously heavy bleed so back to dr hormone levels predict peri menopause symptoms on day 10 very heavy bleed but have read that uterine sarcoma presents with excessive bleeding but not always detected on hysteroscopy or biopsy has anyone had experiences of miss diagnosis on first set of tests?not sure wether to be pushing for another scan
Hi Daisy
I am sorry that you have such heavy bleeding.
My advice would be to go back to the doctor as although peri menopause can cause heavy bleeding, it does not mean that you have to put up with it. I was prescribed the progestogen only pill and that reduced the bleeding to virtually nothing. I do not know if it is suitable for you but it may be worth asking if it is and if there are any other potential medications to reduce the bleeding. Otherwise you could end up as I did, feeling rubbish and anaemic.
You have mentioned about uterine sarcoma. Uterine sarcoma from my understanding is where the cancer would grow within the muscle/supporting tissues of the womb. With endometrial cancer it grows within the lining of the womb. A hysteroscopy and biopsy is done on the lining so am not sure whether that would work with a sarcoma. I suppose it depends on the position.
I am not sure how they would screen for uterine sarcoma but I personally would ask your doctor directly- Could your bleeding indicate that it would be appropriate for an ultrasound in the first instance. Would it be helpful to do a full blood test including CA125. This would hopefully rule out anything and confirm that the bleeding is normal for peri menopause.
Hope this helps
Jane
I tried that but it didn't work.
Maybe it's worth going back or doing one of those online consultations explaining what is happening and your concerns. Even if you get a phone appointment back. Sometimes they can help.
