Hi. New on here. Had biopsies on endometrial lining on 29/12. Had phone call from surgeon on Monday saying the lab had rung him to say abnormal cells. He said I had complex hyperplasia with atypia and they were treating it as cancer. That a large area were pre cancer but one area that they looked at was cancer and I need a hysterectomy. He has passed all this to local hospital to treat and they should be in touch. But what are the usual time scales with this. I'm so worried about it spreading. And to just get info over phone and not face to face adds to my anxiety
Hi Tashton
Welcome to the Online Community and the Womb group.
I am sorry to hear of your diagnosis of complex hyperplasia and cancer. I remember how I felt when I was diagnosed and its normal to feel a bit all over the place and to have lots of questions.
I can understand your fears about it spreading. What would normally happen now would be the the hospital will get in touch and likely ask you to come in for a CT scan. This, along with the biopsy results should give you a provisional stage and grade. A hysterectomy is the normal treatment. I had mine in April 200 - exactly 4 weeks after my first symptom of a bleed.
I would imagine that after the CT scan there will be a few days delay while they look at the scans and then normally I would expect you to be called in to talk through the results, talk about the hysterectomy and do the pre op checks. For me once I got to see the consultant surgeon - it all happened very quickly. I saw him on the Friday and I was having the op on the following Monday.
My hysterectomy was very straightforward, done via key hole and I had very little pain. I spent 1 night in hospital and then went home to recover. It was a case of resting and taking it easy and avoiding any lifting. About 3 1/2 weeks after my surgery I was given my post op pathology results. There is a variation between hospitals but this seems a normal time. It is the post op pathology that will give more detailed confirmed stage and grade and is used to decide whether any follow up treatment is needed.
I do understand that it must have been difficult to be told over the phone rather than face to face.
It is normal to have questions so I will pop a link below that you may want to look at at some point. I found it useful myself.
Womb cancer booklet | Macmillan Cancer Support
If at any point chatting things through would help then please do give the Support Line a call. The details are below and they are lovely on there.
If there is anything else you need, please do ask. There are a lovely bunch of ladies on here who will want to offer you support and we all understand the journey as we have been there.
Jane
