Feeling really nervous

FormerMember
FormerMember
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I'm sitting here waiting for my mid treatment CT feeling so nervous. Even though I got the news that my CA125 had returned to normal, can this scan still show up something nasty? Bloods don't tell everything do they?

  • Hello Hop5

    When I had my first CT scan, December 2021, they informed me that apart from the womb cancer they had found nodules on the lungs,  cyst on my kidney and a haematoma on my liver!!!

    This came as a shock, it all turned out to be:

    • Nodules on my lungs due to the recent covid virus. These disappeared when I had end of treatments scan.
    • Cyst on my kidney was there years  previously and does not give any problems.
    • Haematoma on liver is a mystery but I do not feel any different and no illnesses identified that would give this explanation.

    So yes, it may show 'other' things, but as we're older now, it is more common that they see things that maybe not necessarily worrying unless there's symptoms or further investigations needed.

    In any case I hope it all goes well and that it shows treatments working for you. 

    Madesp 
  • Hello  

    I will be having these checks in the near future and I bet I will feel the same. It seems to me completely understandable. I have just read  's reply and it has inspired me. I hope it does you too!

    We are all warriors and we are all doing the best we can.

  • FormerMember
    FormerMember in reply to Madesp

    Hi Mad,

    How old are you, if you don't mind me asking? I have just read your bio and its very positive. Thanks re the nasty things that may well be found that turn out to be nothing bad. I suppose I am worried they will see a spread or a new cancer as this would not necessarily show up in my bloods would it? 

  • FormerMember
    FormerMember in reply to KT89

    Hi KT89,

    It does, as does her bio. You are right, we are all doing our best x

  • Hi I'm 65, be 66 in few months. I was 63 when I had my operation in January 2022. I do think this is a common age for this cancer to surface. 

    Madesp 
  • Hi Hop5

    Try not to worry too much, it is understandable to have anxiety around any scans. Try and see the scans as a tool for the doctors to decide which treatments are best for you and to monitor how they are going on. I do get the nervousness though. It sounds promising that your CA125 is normal and hopefully the results will show that the treatment is working for you. It is possible that any scans may show other things, but these are not necessarily things that are a cause for concern as Madesp has shown.

    Please do let us know how you get on.

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hi  

    What is a normal level of CA125?

    Many thanks. 

  • I was told anything under 35 is considered normal. After treatment I was 13. 

    CA125 is only a useful diagnostic marker though and not the whole picture and it can go up and down for other reasons such as infections.

    If CA125 goes down it suggests that someone is responding to treatment and the cancer is reducing, if it goes up it would suggest that if due to the cancer, the cancer cells are becoming active again. 

    This is how it was explained to me by my consultant.

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • FormerMember
    FormerMember in reply to Madesp

    Hi Mad,

    I was 54 when diagnosed just before my birthday so 55 now. I did read it's more prevalent in post menopause women and I've been in menopause since 49. Take care.  

  • FormerMember
    FormerMember in reply to jane2511

    Thanks so much Jane x I'm not sure what's happened to me but I've gone from being very at peace and calm with it to suddenly feeling panicky and doom and gloom. It was anniversary of my dads death yesterday and my mum's first anniversary today so could be a factor. Plus my 18 year old returns to uni in the States next week so I feel flat x positive pants back on asap lol x