Hi - I’ve just joined. I was told by my gynaecologist on 27/12 that I have cancer but they are doing more tests on my biopsy because they don’t know if it’s endometrial or in the muscle wall of my uterus. I have a CT scan of my torso on Friday to explore extent of any spread before my first appointment with the oncologists. The biopsy was taken under GA on 9/12 and I’m told it’s quite a large mass.
i’ve been beating myself up since i was informed, cos I’d had the odd bleed/ spotting over the last few years but what with lockdown/ other priorities/ not wanting to be a bother for something that was probably nothing, I didn’t get it checked out. And since virtually every symptom of the menopause could potentially be something else serious, how are we supposed to know when things really need attention? Especially when we’re subtly discouraged from putting more pressure on the NHS
I knew immediately after the biopsy that it was going to be bad news, because the first thing they said was “would you like us to bring your partner in” - so seeing the consultant for the initial biopsy results was really just confirming what I already knew in my heart
Right now, I’m not really feeling anything emotionally - just feeling numb cos it’s all very surreal. And physically, I don’t feel unwell.
But every now and then, it’s like this flashing sign in my head that says “I have cancer”.
I just wanted to say hi, and I’ll be back when I know more. I was given the option to be called when the full biopsy results are in rather than waiting for possibly another couple of weeks for the F2F appointment, so I’m hoping that I get some more information this week so I can be a bit more prepared for what I might be facing.
Evening Coco5 and welcome to the group and to this emotional roller coaster ride. Thinking of you as you prepare yourself for your predicted staging CT this week and hoping your results come back swiftly. I was fortunate in that my predicted staging MRI results came back in 3 days, but that was a couple of years ago. This screengrab from the Macmillan page on grades and stages may be helpful to you as it may help explain what the CT is for.
(from this page https://www.macmillan.org.uk/cancer-information-and-support/womb-cancer/womb-cancer-stages)
I’d encourage you NOT to Google but to use this Macmillan site and this group for info, as then you will be getting up to date accurate info. I’d also strongly recommend phoning the Macmillan help line if you need support - 0808 808 00 00 8am-8pm 7 days a week. I phoned them very soon after I was diagnosed just to touch base and again once or twice each week on average. I also called my CNS for help - you should be given details of yours soon if not already. Bless you as you process this and let it all settle, and as you work out your way forward.
