Hello everyone,
I had endometrial cancer diagnosed in 2018 and I had a hysterectomy followed by 25 days of radiotherapy. I have not had a return of the cancer in the pelvic area but was diagnosed this year with two lung tumours which have been identified as secondary endometrial cancer. I am now having six cycles of chemotherapy (Paclitaxel and Carboplatin). I have been told that I will not be able to have surgery, even if the tumours shrink and I wondered if there are other people who had had a similar experience and how they responded to the chemo. I am quite emotional about this diagnosis and prognosis as I had just been given the 5 year all clear. Good news stories would be helpful as I can't find many accounts of people's recovery from this diagnosis.
many thanks
MadamT
Hello Madam Trout
I am very sorry to hear that you have had a recurrence in your lungs from your endometrial cancer. It must have been so hard to hear after being given the all clear at 5 years. It is very natural to feel emotional, angry and upset in these circumstances. I think it is something we all fear- the cancer coming back.
I had paclitaxel and carboplatin as adjuvant chemotherapy Mar-Aug 2022. It was challenging at times but it was doable. There were some side effects but they were managed on the whole with medication and adjusting the doses. Lots of rest was needed in the first week after each cycle but then I did feel better the week after. Its a sort of go with the flow experience- they have to tell you all the potential side effects but in reality I didn't have most of them so, every one is different as well. I had tiredness, some nausea and some neuropathy. I did lose some hair but kept most as I opted to try scalp cooling. The main thing I found is to rest a lot, avoid infections and to call the helpline (they will give you a 24 hour number) with any symptoms and for advice.
It's a shame that you have not found many good new stories yet but I do think that people turn to Macmillan when they are diagnosed and under going treatment and sometimes once recovered they can move on a bit and don't use the site so much. So probably we hear more from the people who still need support.
Hopefully you have a supportive CNS that you can ask questions to along the way and provide plenty of support. Good Luck with the chemo and if there is anything else you need please do ask. The Support Line is also there if you feel you want to talk things through. The number is at the bottom and they are lovely on there.
Jane
