Hi everyone,
I'm new to the forum, apologies if this has been raised before, I started to look back but got a bit anxious seeing some of the topics!
I'm 54 and was diagnosed with stage 1 endometrial cancer in July after a year of light bleeding. I'm obese so have to lose at least 4 stone before I can have a hysterectomy. This is going fairly well with diet and swimming.
I had a lot of bleeding after my hysteroscopy and was given Tranexamic Acid after a week. I requested some after I had the Mirena fitted and was told I wouldn't need it. I was ok for a few days then I had a massive flood. I went back to the gynae acute treatment unit, wasn't examined and was told it should clear up in a few days, spotting is to be expected but come back if heavy bleeding. I would describe it as between the two. I called the oncology nurse for reassurance and was eventually prescribed another course of Tranexamic Acid.
2 weeks post Mirena insertion, after the Tranexamic Acid course, there was no improvement so back I went to the GATU with a used sanitary towel in my handbag. I was examined, the Mirena is in the right place, and was given more TA plus Norethisterone tablets (progesterone). After a few days it cleared up completely - for just long enough to go for a day out wearing light coloured trousers. Thank goodness I had a coat with me. I called the onc nurse who said everyone's different, some women bleed, some don't.
If I'd been told at the start the bleeding may continue I would have been able to accept it. But after being told I wouldn't need the TA, then being told spotting was normal (this is not spotting), then having a bit of a struggle to get the second dose of TA, I have a nagging voice telling me that this isn't normal, something is not right down there. For some context I was originally told there was nothing of concern following a transvaginal scan in January, my GP noticed the thickened endometrium in a discussion about HRT in May so I have experience of something not being picked up.
After that ramble, my question is what are everyone else's experiences of the Mirena insertion? Is it common to still be bleeding after a month, or should I insist of further investigation?
Thanks for reading. Best wishes to you all xx
