Confused and anxious

Hello Cathyc123

I am sorry to hear of your Womb cancer diagnosis last September.

I can understand your confusion following your last MRI and think it is a good idea to contact your CNS for some clarification today. 

Although you have had 2 clear biopsies in the past it is perhaps reassuring that over all the tumour is still at grade 1a and has not progressed? I think give your CNS a call and ask about it. Maybe write a short list of questions so you are ready and nothing gets missed,

Good Luck and let us know how you get on. If you wanted to talk it through first then perhaps give the support line a quick call. The number is below and they are lovely on there.

Jane

Hi Cathy. Firstly sorry to hear your diagnosis, I hope you are doing ok. I had a similar experience and this is how it was explained to me which I hope will help. Please of course call your nurse as they will be able to go through in more detail related to your specific case.

I was told…grade 1A means there are cancer cells but they are contained within the lining of the womb. Sometimes with this type hormone treatment (in my case the mirena coil was fitted) can help stop any progress of the cells and sometimes even makes them regress in to pre cancerous cells - they monitor the progress by taking a biopsy every 3 months to ensure there is no progression - this might be why yours showed no malignancy as they’d regressed. I was told however that it isn’t a cure and they will inevitably become cancerous angain and the only cure ultimately was a hysterectomy. I was given time to decide as I too have no children but decided as I was 42 it was the right thing for me to go ahead with the hysterectomy. I’m not sure how it all works if you did want children and how they manage the cancer through any potential pregnancies so if children are in your plans it’s definitely a good discussion to have with your consultant/nurse. Equally if you want to go ahead with a hysterectomy that is also something you can ask for too. My original consultant kept saying I would be kept on the coil and 3 monthly biopsies but I couldn’t live with that thought long term so I pushed for the hysterectomy and am now 4 days in to my post surgery recovery. 

I hope that helped a little, ultimately of course everyone is different so do seek advice from your nurse and consultant as they can discuss the options that you want - I found a lot of comfort in being in control of some of the decision making