Up and down

Hi Jkg. I too had right groin pain, when I walked, but it was only intermittent and I haven't had it again, since my surgery, so am assuming, that along with the bleeding, it was another symptom. However try not to worry, as, although mine was grade 3 serous, so very aggressive, there was no spread outside the uterus and if the tumour had not breached the uterine muscle very marginally, I would not have moved from stage 1a to 1b and required treatment. The pain in my case, did not indicate spread, so try and stay as positive as you can. You will get that time with your grandchildren I'm sure.

Hi Jkg,

First of all let me reassure you that you're feelings are valid. I'm sure all of us on here have at some point, felt as you're feeling now, I know I definitely have!

One of the hardest parts of the diagnosis of cancer is there are many times when we come up against 'the not knowing '. 

I understand it is easier said than done, but try not to worry too much until you know what you're dealing with. 

I think many of us have thought of cancer as an imminent death sentence, but fortunately, this is often not the case anymore, as you will discover from many in this group. 

You very much remind me of myself just over 2 years ago. Keep the hope, try to stay positive and post on here whenever you feel the need.

Keep me informed. You can read my profile by clicking on my name and you can also write your profile. 

Sending love and hugs

Helen  xx

Hi Love to Walk

That is very reassuring, thank you.

Hi Helen,

Thank you. I am realising it is best to take one day at a time and not dwell on the situation. 

Julie G

Hello Jkg

I am sorry to hear that you had a down day yesterday. It is perfectly normal in the circumstances and I am sure that there are a lot of us on here who remember being at the stage you are at the moment. 

I was treated for carcinoma sarcoma last year. If you click on my name you will see my timeline but I am now clear of cancer and see the doctor every 12 weeks for check ups. There are different types of grade 3 endometrial cancer and I was told that the type that we have is quite rare. Its a type 2 endometrial cancer. Further treatment depends on what stage you are graded at after you post op pathology and there does seem to be some variance between different hospitals.

You are right that they do tend to throw everything at you and I know that I felt overwhelmed when told I would need further treatment. It was not easy at times but it was doable and it is surprising what you can deal with when there is not a lot of choice. My consultant explained to me that the scans help pinpoint exactly where the cancer is and helps with the surgery and for them to talk about the best treatment options. My cancer was still contained within my womb and had not spread but I had some LVSI. I was advised to have chemo and external beam radiotherapy. I did not have brachytherapy like some ladies have had on here and that was because my cancer did not grow down towards my cervix and there were no cancer cells there. 

I can understand you worrying about the groin strain feeling. Thinking back to the time when I was diagnosed I had no symptoms other than bleeding until after the biopsy. After the biopsy I did start to feel a bit uncomfortable and achy. I too was told my womb was enlarged and I do think that it was pressure from this. Also the anxiety made me panic about every slight niggle. If your does turn out to be due to the cancer then you have already done all you can by going to the doctor, having the biopsy and scans. After the biopsy and until the surgery, I had aches that were a bit like the crampy feeling you can get with period pain. 

The waiting around is not great and if you are like me once you have a plan in place things will feel a bit more in your control. I hope that it is not too long before you have all the results needed and a treatment plan in place. In the meantime we are here if you need us. I also felt expressing my fears and feelings to others did help.

Jane

Hi Jane. I have read your story and I will have to get mine up now I'm more familiar with the site. I know you had a big bleed whereas for me it was a continuous drip after initial spotting. The Registrar did tell me they had removed "polypy things" and so I asked the Macmillan Nurse about the Histology report and she confirmed that. I wonder if that is unusual with the sarcoma diagnosis as she then said Oh well we know you have some kind of cancer.  I have a vision of my uterus being in an absolute mess so no wonder I have developed the groin/leg pain.  I know I am going to want every bit of information they can give me as to what they find.  Before this I was fit and well so hopefully that will be in my favour.  Crossing my fingers that the fact my scans have come through earlier than I was told and that this is an aggressive one that this means they are eager to crack on asap.  I will obviously give an update next week.

I think I had probably been bleeding inside for some time and that when my womb could not hold it, then I had the big bleed. The nurse who did my biopsy felt the same. She said some people have a bit of bleeding that continues whereas others have a bigger one. I think it depends as well where abouts in the womb the problem is. I had a big bleed the day I ended up in hospital and then virtually nothing. During and after the biopsy I bled heavily again. I didn't have any polyps. 

I think that with anything in the womb, even like with period pain that it can affect top legs/groin area. I think also that the biopsy is a pretty invasive procedure and with an enlarged uterus there is bound to be strain on the ligaments in the area. 

Being fit and well before hand will help, I am sure. 

I did not know mine was carcinoma sarcoma until I got the post op pathology results back so did not know it was aggressive until then. However I still had surgery 4 weeks from the first hospital visit. Hopefully they will get you in quickly so you can begin your treatments whatever they suggest is needed. 

Let us know if there is anything else we can do to help in the meantime. 

Jane