Hi – not sure if this is the right place to be posting as no diagnosis but on 2WW endometrial cancer pathway after slight post-menopausal spotting, internal examination by GP, next day abdominal and transvaginal scan – thickened endometrium 8.5mm. I wasn't able to book an appointment using Choose and Book and was told the hospital preferred to contact people direct. Result = anxious wait to get appointment, which I got morning after contacting PALs (had heard nothing for first 10 days) only for me to be re-contacted the following morning for an earlier (Saturday) appointment, which was then cancelled that afternoon on grounds of staff shortages. On the 15th day I was offered back the cancelled appointment! As it was the same day as the MDT meets can only assume they were prioritising appointments. I subsequently had a hysteroscopy which was unpleasant but bearable (I took painkillers beforehand). The hysteroscopy found and removed a polyp not reported on the scan (hiding behind a fibroid) and also took biopsies of my womb lining and a fibroid. I was told if results are normal then I will get a letter within 4-6 weeks but otherwise will get short letter (2-3 weeks) inviting me for face-to-face appointment to discuss results. Have managed to keep myself calm while waiting until I went for routine mammogram. Afterwards, I started shaking and had to go to cafe to try and compose myself. I think it was both the thought that I was the exact same age my mother had her stage 3 breast cancer diagnosed on a routine screening and I realised I hadn't been checking my breasts as I should. So when asked very simple question any concerns I stupidly had to own up that I wouldn't know as hadn't been checking. Mother already had hysterectomy in her forties! I have a lot of risks for endometrial cancer – PCOS, insulin resistance, early menarche, late menopause plus abdominal fat – BMI is normal but my waist measurement is not. The reason I have joined this group today is I realised there is a doctor's strike and am thinking this may be reason for system delays? Am interested to know if anyone else is waiting on hysteroscopy biopsy results and if they experience any delays. Plus any tips on coping with the wait? Also, the consultant mentioned I had atrophy – to be expected post-menopause. That sounded very odd, however, given I'd been referred for thickened endometrium. I know it's stupid to try and second guess results. I'm just trying to process everything. Also, even if my results come back normal I'm not sure the fear of cancer is going to go away now I know I'm high risk for both endometrial and breast cancer. I think it's the endometrial cancer I'm most scared of, however. I honestly don't think I could ever face a hysterectomy. So I've built things up to the point where I'm not sure I'll even want to open the letter from the hospital when it comes! Sorry for the rant. But I really needed to get this all out. There seems to be a wonderful bunch of very brave ladies on this forum. And in the context of that I'm telling myself how ridiculous all these fears are, especially at this pre-diagnostic stage. Has anyone else both been desperate for results and not even wanted to open a hospital letter? Am feeling nauseous at every postal delivery. Is this normal? Rose
That's great news JaneAustenfan- am really pleased for you
Jane
That's so great to hear JaneAustenfan! Hope you enjoyed the celebration! Thank you for giving me support also. It helped so much. Love Rose x
Hi
i had a hysterectomy 4 days ago and I’m up at about.
agter my hystoscopy I had to wait for biopsy results and that was the worst wait. I kind of knew it was cancer.
I’m currently in the waiting game again as they have sent some lymph nodes for analysis as they were showing on a PET scan.
im hoping it’s just the endometriosis that’s affected my nodes but I’m just waiting.
Dont be scared of a hysterectomy- I was petrified but it really was ok. Everyone was soo lovely.
Thank you for sharing Kazzacupcake. I hope you get good news re the lymph nodes and that your recovery from the hysterectomy continues well. x
To conclude this thread, I got good news re mammogram (results were quick) and we finally heard my daughter's lesion was precancerous (dysplasia) – some labs are slow. I'd like to say we got lucky, but sadly my sibling died suddenly in the intervening period (was only mid-fifties and younger than me). It seems an undiagnosed cancer may have played a key part in this. My sibling had symptoms but was very stubborn and refused to seek medical help. Burying one's head in the sand is not a good thing to do. Thank you again to everyone on this forum who was so very kind to me when I sought help. It has helped make a very difficult period more bearable knowing there are kind people out there. I really appreciated it. x
Sorry to hear about your loss. My Mum was like that and just ignored symptoms because she was very afraid of any internal examinations. So things had progressed very far and her cancer was wide spread. Thankfully there wasn’t much pain but it felt as if she died far too young. Her head in the sand approach was why I reached out immediately when I had a slight post menopausal bleed.
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