Thickened lining and now the waiting...

Hi Jibberjabber

My experience is completely different to yours, I was told that a womb lining under 40mm was good.  Mine is 30mm.

I fully understand not wanting to talk to anyone in the family, I waited until I had almost all the information about what was happening beforehand.

The waiting and not knowing drives you to distraction, my emotions are still all over the place.

The wonderful, lovely ladies on here will have more knowledge of what you are going through and they are a wonderful support.

Having the private medical care is great as you will get seen sooner and have more idea of what’s going on.

Please keep updating so we can support you.

Linda

Thank you.  Can I ask how things are for you?  I only got information from Google so probably not the best place to check for medical information but I honestly had no information or knowledge about womb lining and thickening and fell into the trap of checking online.  Its only been 3 and a half weeks since they phoned but the waiting is its own torture I think isn't it?  

I started 10 months ago having post menopausal bleeding, I was referred to gynaecology for a scan and was told everything was fine and just likely to be vaginal dryness.  I had an appointment to see a gynaecological consultant who did a hysteroscopy & biopsy on 13 April. I then had to go to urology and had a scan there but nothing was found, although I was then sent for a more detailed scan.

I heard nothing at all until 20th June when I got a phone call to advise I was being sent for a CT Scan the following day.  I got another phone call in the afternoon to say that the biopsy has shown cancerous cells and would need another biopsy done the following day too.  I had to wait two weeks for the results which were among the longest days of my life.

I had to phone my CNS (cancer nurse specialist) for the results and confirmed the diagnosis.  I had an appointment for 11th July with the registrar to say surgery booked for 25th July.  This was when I told my family.

I was due to go on holiday 05 September but had to cancel as I won’t be fit for a long flight to USA.

Before the surgery I have an appointment at the Clinical Oncology clinic to discuss further treatment, although I was told that I wouldn’t require anything after surgery.

Personally I am all over the place and not holding it together very well.

That's awful that you had a scan and biopsy in April but didn't hear anything until June and then more waiting?  I am so sorry to hear you now have a diagnosis but it sounds like you have an action plan in place.  Positive thinking and start planning your holiday for next year when you will hopefully be fit and healthy and ready for a nice holiday.  I am sad to hear you are struggling and can only imagine how difficult things are for you at the moment but look after yourself and be kind to yourself.  You aren't superwoman so its perfectly fine to need support.  Thinking of you

Welcome to this group. The waiting for results and appointments is very stressful. Inevitably our mind goes into overdrive thinking about every possible scenario.  I was in this position last year - and I was very anxious - but I tried to focus on the next appointment or diagnostic test rather than looking too far ahead. It was unfortunate that the NHS didn't meet the 2 week deadline but good news that you have been able to make arrangements via the private route. It's best not to Google too much - although I suspect that most of us have done! You will get plenty of support and advice from this group so feel free to ask about concerns and queries you might have. 

Thank you.  I'm a planner so its hard not to think what if and if it is what needs to be done.  Just need to focus on Tuesdays appointment and then hopefully know more.

Keep sharing on here, as we're all here for you. Click on my name and you'll be able to see my story. However, remember, everyone is different and your journey through this might not be anything like mine. Avoid Doctor Google where possible, as it can be very scary! I didn't tell any of my family apart from my husband, until I had had a confirmed diagnosis. Good luck with everything.

Thank you, it does help having some understanding that we are not alone on this journey even if it is different for each of us 

Thank you.  Trying to avid google now and just wait and see.  I hope everything is going well for you now?  Truly, a lovely group of ladies here and so supportive.

I understand that as I was a Project Manager and was always thinking about the 'what ifs'. Just had to try and concentrate on the 'what is' and deal with the 'what ifs'  when or even if they occurred.