Hysterectomy

Hi Fuchia, well done for having your op and getting on with your recovery! The histology investigations from a hysterectomy are quite thorough. For example, the histology from my hysterectomy showed not only my endometrial cancer, but also a few cancerous cells on top of my cervix and a rare pre-cancer in both my fallopian tubes. I had a peritoneal wash too in the course of my op so that was looked at too. I am hypothyroid too (auto-immune) and I didn’t need any extra checks post op, just my normal annual blood check. It’s normal for your records to be at the hospital where you were seen/treated - this is why they ask us at our pre-op about other health conditions and meds so that cross-referencing can be done, I hope you continue to make a good recovery and get your results soon, 

Hi Fuchia

I agree with MarmiteFan59 regarding records and responsibility currently on us to flag things. My hospital trust seems to even have different systems within their own teams and sadly no centralised record handling yet.

I'd suggest erring on the side of tell every team everything and don't feel bad doubling checking if they have remembered what you've told then previously as staff can be very stretched. 

Hello Fuchia

Well done for managing so well with your hysterectomy and first stages of recovery. The injections into your tummy are not nice. I expect you have some lovely bruising by now! I was black and blue despite trying to inject in alternate sides and varying sites. Really uncomfortable. 

With regard to the results, I had a similar thing and was expecting a call on the Thursday (in my hospital it is the day they do the MDT) but the results had been delayed so it was not until the following week I was called. In the end I emailed the consultant's secretary and the surgeon phoned me with them. I was then called the following day by my CNS. 

Taking a little longer to look at all the pathology is not unusual and they have to be really clear about the results and to discuss with the MDT before they pass to you. It's things like grades, stages, lymphatic space invasion, hormone positive/negative and cell types. Mine was p45 wild type and still not sure what that means. Mine also said something about no MMR which I also do not know what it means. But just saying they are looking at lots of different markers when they look at your pathology post op. All of this they gained from the post op pathology. I had one biopsy pre diagnosis and then this post surgery pathology. No other biopsy. 

Re  thyroid. I would recommend mentioning it to you CNS/team but would think this would be dealt with by your GP so maybe check with them. I did online consultations with mine and it maybe that they invite you in for further blood tests. 

Re heart problems; I would think wise to inform him but maybe this is something to also discuss with GP who maybe able to do this directly for you? 

I understand about the notes, I was also surprised that the notes were not all on one system as would seem far more sensible. 

I am glad that you have found everyone on here supportive and helpful. They are great on here and it really does help to share with others who understand. There are some great people on here!

Keep up with the walking if you can. It was a big part of my recovery and getting out and about in nature, particularly during this recent lovely weather is good for both physical and mental health after going through something as big as a cancer diagnosis and treatment. 

Fingers crossed that your results come back soon and please do let us know how you get on.

Jane

Thank you for your reply it is very good advice which I will use next time I go to the hospital or they telephone me.

• I will mention to my GP about my thyroid if I can have a blood test to monitor it. I have a telephone consultation Thursday.
• I am also seeing my Cardiologist Friday which I hope is just fir checkup since being diagnosed it is managed ok so far.
• Very grateful for your reassuring information. It does help being able to get information from people who understand your problem.

Thank you for your information. It really does help me to be able to be in contact with yourself who can give really good advice. Thank you for your good wishes.

Fuchia, your thyroid is likely monitored annually anyway (that’s the norm) - can you remember in what month it’s usually done? 

Happy to help. If there is anything else please do ask. Good luck for Friday.