Still Waiting

I went back to Secretary who has said results are with consultant for his signature and plan.  I think that tells me all I need to know, if results were ok there would be no need for a plan…..

Hi Duffers Mum,  welcome to this forum where I'm sure you will find support and advice. Waiting for results is very stressful and the longer it goes on the worse it is. As your case is now with the consultant then hopefully you will hear something fairly soon. I know everyone is different but once I had a treatment plan I felt less anxious about the situation. In the meantime, you might want to give some background about your situation in your account details - a bit of  information about yourself, your symptoms and any diagnosis so far. Writing things down, especially when you're worried, can be helpful. x

I’ve posted before but couldn’t find the thread! Second lot of PMB, first time polyps, all removed, results were fine, 4 years on they’re back again, womb biopsy was clear, next hysteroscopy to remove polys was abandoned as my blood pressure was too high, four weeks later all removed and I’m waiting for those biopsy results…but once I saw the word “plan” on secretary’s email I started thinking it can only be bad news, I’ll just wait to wait to see what letter says once it’s sent to me… still hoping the results will be ok but there’s that niggle in the back of my mind 

It's probably the standard wording that the consultant's secretary uses. Hopefully you get some clarity on the way forward soon. 

I had polyps removed three times for post menopausal bleeding, The latest August 2022. Previously benign but atypical hyperplasia cells in the polyp last year. I waited 4 weeks for results and had to make an appointment  to discuss them as there was a 40% risk of associated uterine cancer and I was advised to have a total laparoscopic hysterectomy, including cervix tubes and ovaries.  I had surgery in January 2023.  Fortunately no cancer was found, only hyperplasia.  I

I’m still waiting, it’s really not fair to keep people waiting getting on 5 weeks, I know it’s going to be bad news so I  wish they’d just tell me…if a hysterectomy is needed it throws up a further problem because I’m fat…the worry is making my anxiety go sky high and as a result I’ve almost totally rubbed away one of my eyebrows..I’ll be starting on the other one before too long.

originally after my womb biopsy came back clear the consultant didn’t even think I needed to still be on the urgent list for a hysteroscopy…if I hadn’t insisted I’d still be waiting for the polyps to be removed.

I spoke to consultants Secretary this morning and…he’s away on holiday, again! He has seen my results but I’ve not yet been discussed at the MDT, hopefully that will be next Tuesday or next Friday, by which time it will have been 6 weeks since my biopsy.

personally I think that is far too long for someone to wait without any response to what their results are…I know there is nothing I can do about it but it won’t stop me worrying or my anxiety going through the roof…if they take this long with biopsy results I dread to think how long I will be waiting for further treatment if it’s needed..,really wish I’d paid to go private.

So sorry to hear of your experience. The delay must be agonising for you. I was very lucky, that I got my biopsy result in under 3 weeks and from there the speed at which things happened was incredible! Almost overwhelming! Really hope you get your result soon and hopefully from then, things will happen much faster.

Previously, in 2019 and then the first biopsy for this case of PMB, the results have been back really quickly, no idea why it’s taking so long this time, although of course there has been Easter, 2 bank holidays and the junior doctors strike so that could have had an effect…I’m just hoping when I eventually get the results they are all normal but the longer it goes on, the worse my anxiety gets…she did say that when results come in to consultant if there is clearly an urgent issue then people are sometimes contacted straight away, as I haven’t been yet, maybe the results will be ok..hopefully by this time next week I should know 

But the more I think about things…why would I need to be discussed at an MDT meeting if everything was ok? Doesn’t make sense..when I Google MDT every answer comes up with cancer and if that’s the case it’s just downright cruel to keep people waiting 6 weeks before telling them…not sure I can go another week with all this hanging over me, my head is shot