Newly diagnosed

Hi Maisie63

I had initial diagnosis a few days ago and waiting for MRI. I don’t know if it helps to know that I too am experiencing a roller coaster of emotions. I tell family and close friends that it seems the cancer is at an early stage and there is a good treatment plan in place. Then I wake at 4am and can’t get back to sleep for worrying about MRI results and all the ‘what ifs’.
Perhaps we will feel a bit better further down the line of treatment. 

Thank you so much for yr reply when you are going through the same worry. I was booked in for surgery during my appt this week with consultant. Have about 4 weeks to wait. Hope you don’t have to wait too long for your results. Can we keep in touch as we seem to be at a similar point on our journeys. Sending hugs. 

Hello Maisie63

Welcome to the Online Community

I am sorry to see that you have been diagnosed with womb cancer. Going through all the testing and diagnosis is such a stressful and worrying time but there are lots of lovely ladies on here who have been in the same position as you and will understand how you are feeling. Feeling up and down, scared, emotional and feeling like you are falling apart are all natural reactions to the shock and worry. Being snappy with those around you is also natural- I found that I did take it out (not intentionally ) on those closest. Even the most positive person would find it overwhelming at times. 

I will pop a couple of links below that may be of help if you wanted some more information.

-This link tells you a bit about diagnosis and gives you different ways in which you can contact Macmillan for support.

Diagnosis | Macmillan Cancer Support

-This link is some information around womb cancer that you may find helpful.

Womb cancer | Macmillan Cancer Support

-This one is about the surgery that you are having.

Hysterectomy for womb cancer | Macmillan Cancer Support

I hope that this may be of some help but any questions please do ask

Jane

Sure we can keep in touch. I am already finding that talking helps.

Hugs to you.

Thank you so much. 

Thank you, yes definitely feel better chatting to others going through same thing 

Hallo Maisie, welcome to the group! Adapting to the emotional rollercoaster can take a while, and I’m not sure we ever do completely, but with support you will be able to find a way through. I was diagnosed in November 2021 and had my hysterectomy in January 2022. I wrote a diary thread to try and help demystify it a bit, and the link is here https://community.macmillan.org.uk/cancer_types/womb-cancer-forum/f/diagnosis-and-treatment/232566/hysterectomy-day-and-after---diary?pifragment-13906=1

I found that trying to be positive all the time was not doable and actually put me under a lot of pressure that I didn’t need. I learned it’s actually fine to sometimes be anxious, fall apart and be a mess - and doesn’t mean you’re not coping. Just as with a rollercoaster ride, there will be ups and downs, Rather than trying to be positive, I opted instead for trying to be pragmatic - just focusing on and getting done what was necessary. I phoned my CNS frequently (hopefully you’ve been given the contact details for yours?) for support. I also learned to try and focus on what each day brought rather than the what ifs (it took practice).

Feel free to click on my name and read my profile, and maybe also my hysterectomy thread, and ask anything you like. With support you can learn how to cope and get through this. Take care.

Thank you for your msg & have checked out link  you sent. I think I will reread it several times when feeling a bit low too. Will try & focus on what needs to be done. I need to stop putting pressure on myself trying to show everyone I’m coping. Hoping your treatment was successful. Sending hugs.