So after many months of suffering and the doctors ignoring my symptoms, i was finally diagnosed with Endometrial Cancer on the 24th March at the grand old age of 31yrs old and just 9 weeks after my husband was diagnosed with testicular cancer! On the 29th March i had a ct and mri scan to determine how far gone the cancer is and see if its spread anywhere else. Due to it being good friday last week, my hospitals Friday meeting to discuss the results didnt go ahead and they would have only discussed it at yesterdays Friday meeting. I have my results appointment next Friday! Finally!!
Mentally ive been coping ok. After the news i felt numb, kept crying and went extremely quiet. Since then ive had an angry stage, a denial stage and now im in the worry/anxious stage. The not knowing if its spread, the not knowing if they're going to take my chances of becoming a mum away, the not knowing how long I'll be off work for and the not knowing what treatment i need is definitely taking its toll and i feel my mental health is on a downward spiral as we approach my results appointment.
Im wide awake at 4:30am after only going to bed at 1am because the worry has woken me up. Plus ive developed a weird pain in my tummy the last couple of days which my doctor has decided is just due to my weight and not being caused by anything else. Yet my weight hasnt changed in about a year but hey ho, docs like blaming my weight for everything, that's the reason im in this predicament in the first place! I feel sick which i assume is the anxiety around everything and just want to scream at the world around me!
I dont really know what the point of this post is but i was advised to come here and write one so here i am! Maybe it was just a chance for me to rant and get those feelings off my chest...i don't really know. #shrugs#
Hello Bugalugs91
Welcome to the online community. I am sorry to see that you have recently been diagnosed with endometrial cancer and so soon after your husband has been diagnosed with testicular cancer. Having tests and being diagnosed with cancer is such a stressful and worrying time and your reactions of numbness, anger, denial and anxiety all sound entirely normal and to be expected at this point. I felt similar myself.
We can not take away what you are both facing but we can offer you support while you are going through it.
There are lots of lovely ladies on here who will have faced similar to you and I found sharing experiences with them did help.
Here is a link to some information that I found helpful when I was first diagnosed. You may find it useful to look at, at some point. I would recommend that you avoid google and stick to Macmillan as the information is accurate and up to date. The first thing I did was to consult google and that frightened me silly.
Womb cancer booklet | Macmillan Cancer Support
I see that you have had a CT/MRI scan and are waiting for the results. Waiting for the results is hard- mine were also delayed due to Easter last year and like you the MDT only met once a week. At least you know that you have the appointment next Friday and that gives you a bit of time to prepare any questions you might want to ask. I wrote down questions before mine and it helped as I normally get really anxious and my mind goes blank.
My meeting sounds similar to yours in that I already knew my diagnosis but was finding out CT results and also what the next plan was. I went on to have a hysterectomy so a lot of that meeting was about the surgery and pre surgery checks. I tried to view it as positive- I already knew I had cancer but this meeting was going to sort out how I was going to get rid of it. Not everyone will have a hysterectomy or indeed any of the same treatment. The consultant will take into account all the factors and discuss them with you and then recommend what to do.
I was very anxious before the appointment but actually felt a little better and more in control once I knew what I was facing and what I needed to do about it.
-If you feel speaking to someone will help there is a phone number at the bottom of this. Feeling anxious and worried is normal at this time and they will understand.
-I used the online chat a few times and found that was helpful. I used this to talk about work and finances
-If you need to ask any medical questions I have used the Ask a Nurse section and they normally get back to you within a couple of days. This may be useful once you have had your meeting if you want to ask anymore.
Ask a Nurse - Macmillan Online Community
I am not sure whether your husband has seen the testicular cancer forum but will post the link in case it is of interest to him.
Testicular cancer forum - Macmillan Online Community
I hope this helps, please reach out in what ever way you feel most comfortable with if we can be of any help.
I hope your appointment on Friday goes as well as can be expected.
Take care
Jane
