Hi I'm supporting my wife's at her appt next week as she's been asked to come in and get her biopsy results. She had an endometrial biopsy approx 10 days ago as the dr said she saw some things that she didn't like the look of and I'm guessing it's results time..
I'm experienced in Lung cancer (i have stage 4 NSCLC and have just started treatment) and rapidly coming up to speed with all things womb cancer, but I would be really grateful for any advice or key questions to ask at this first meeting. My wife has been brilliant at supporting me through the last 2 months from diagnosis but tends to leave the research side of things to me so I want to make sure I ask the right questions... thanks in advance
Hi tallbee.
I'm in a similar situation as your wife. I've had ultrasound + TV, and then this week had biopsy.
I'm also on steep learning curve in this field but happy to share the journey with you/your wife.
So far, I found this document useful to learn the anatomy, terminology and also possible pathways:
Hope this will help you and your wife with question prep.
Hello tallbee
Welcome to the womb cancer forum.
I am sorry to see that you are already have experienced lung cancer and now you are supporting your wife through her biopsy and results. Dealing with cancer yourself and now supporting your wife must be a difficult time for you both.
The first thing I would say is to consider making a list of any questions and writing them down- I did and am glad I did as my mind tends to go blank in such meetings. Maybe also take a note pad and pen so you can jot anything down. My consultant was happy to go through my list.
These are some things that I asked when I was in a similar situation- they might be of help................
- what is the diagnosis. An endometrial biopsy can show different things.
-If it turns out to be a cancer -what type/stage do they think it is at, do they think it is local or spread further- this will influence treatment options
-If it's not cancer-what is it? what treatment is needed? Could it become cancer
-will there be any further scans/CT etc
-what treatment is recommended?
From my personal experience I was recommended a total hysterectomy with bilateral salpingo- orphrectomy (this means womb, fallopian tubes and ovaries) My cancer was staged and graded from pathology after the operation and from that I went on to have further treatment. Not everyone does.
-if surgery is an option will it be key hole or abdominal- this will influence recovery. I asked about waiting times etc and about the pre medical checks. I asked about time in hospital and talked about the injections I would need to do at home.
-if surgery is not an option - what other treatment is there, radiotherapy, chemotherapy, hormone therapy?
I also asked about recovery time from the operation and things that I could and shouldn't do. (hoovering, housework, lifting etc)
I asked about time off work etc.
I also was asked about other medical conditions and medications I was on.
The second thing I would advise is to to take it a step at a time. It can feel overwhelming otherwise. I remember sitting with my nurse after getting my diagnosis and her saying focus on the surgery and then worry about what treatment may happen after once you get the post surgery pathology. I would personally avoid googling anything and instead using the information from Macmillan as it is reliable and up to date. After my appointment I had time with a nurse to talk about what I had been told, time to ask questions and a phone number to call with any further worries. I was also given some Macmillan booklets.
I hope that the appointment goes as well as it can for you both.
In the mean time please reach out if you or your wife have any further questions.
Take care
Jane
Hi Jane thanks so much for the detailed reply - that’s exactly what I was looking for and some great Q’s thank u 
Thank you - that’s a great booklet to read
No problem- if there is anything else you need pls let me know.
I hope that the appointment goes as well as possible and that you both get some answers and find out what is going to happen next.
Jane
Thanks from me too jane2511.
I went very blank in my hysteroscopy on the day review with my lovely consultant this week, even with their continual prompts for me to ask questions. Think pain and shock overwhelmed me a little.
I'll write my questions down ready for biopsy finding review and your suggestions will make a great framework.
tallbee - hope your wife's imminent results go ok.
