Endometrial Cancer and Fertility

Hello Mrs B_88

Welcome to the Online Community. I hope that you find the community as informative and supportive as I have. 

I am sorry to see that you have been diagnosed with Endometrial cancer.

Being diagnosed with cancer is a worrying time and the ladies on here will understand this. It must have been a shock to be diagnosed with no symptoms but it is good that it has been while still at an early stage.

It is good that you are going to see the oncologist who will be able to talk you through the diagnosis, arrange any further testing and to make recommendations for treatment. Although it is a stressful time I personally felt better and more in control once I had seen my consultant and he had explained everything and there was a plan in place. I hope that this is the case for you.

The first thing I would suggest is not to google but to trust in the up to date information from Macmillan. When I was first diagnosed I admit I did google a lot and it scared me silly and a lot of the information was out of date and inaccurate. 

Here is a link to some information that you may want to have a look at. 

Womb cancer booklet | Macmillan Cancer Support

This explains a bit more about the types and stages of womb cancer and also the possible treatments that you may be offered.

The second thing that I would suggest is that you maybe have a think about questions that you want to ask the oncologist and maybe write them down before the appointment. Mine was quite happy with me doing this and it did make sure I had all my questions answered. 

This could be an opportunity for you to talk about the possibility of preserving your fertility/IVF and what that would involve. I can understand how upsetting this must be after trying to conceive for the last 3 years. I really do feel for you.

There is also an Ask the expert section on here that might be worth considering with any medical questions and maybe able to give you some more guidance.

Ask a Nurse - Macmillan Online Community

If you feel that it would be helpful to speak to someone there is a support line number at the bottom of this. I have found them very helpful. I have also used the online chat feature. 

If there is anything else we can help with, please do let us know

Jane

Hi MrsB_88  I hope you are doing OK. My story is so similar to yours, 34, fertility issues including a miscarriage over a year ago and had a polyp removed which resulted in a diagnosis of stage 1a, grade 1 endometrial adenocarcinoma. Have been undergoing fertility sparing treatment for a year now. Latest biopsy still positive for grade 1 cancer cells, but less of them! I wonder how you're getting on and if you have gone down the fertility sparing route - it is tough but will be worth the fight if it works. X

Hi I am 32yo diagnosed last Aug 2023 Endo Ca stage 1a. 

I'm so sorry to hear about your diagnosis. I understand how overwhelming this must be for you because I'm also navigating a similar journey with stage 1A endometrial carcinoma.

I had my first negative result, but we're waiting for the next one before I can be referred to the fertility team. When I received the negative result, I felt a mix of anxiety and relief because I'm getting closer to facing the next challenge of trying to get pregnant. I'm also worried that my weight might affect my acceptance into the fertility program.

While I don’t have all the answers, I’ve found it helpful to find something that relaxes me even for a little time. It’s comforting to know we’re not alone in this. Lean on your support network and take things one step at a time. If you ever want to talk or share experiences, I’m here. Wishing you strength and clarity as you move forward.