I met with my surgeon yesterday and the Macmillan nurses.
Mr T had bad news and good news…. The bad news wasn’t new as given they found an enlarged lymph node and it was rapid tested I knew that cancer cells had been found and so I knew on discharge that my cancer was Grade 3a and further treatment was indicated.
The good news was that he removed 19 nodes and the other 18 were free of cancer.
The next step is for me to see the oncologist at my local hospital to discuss the nexts steps… chemotherapy and/or radiotherapy.
Obviously I am a little nervous about further treatment though the Macmillan nurse who saw me after said that this kind of womb cancer is very treatable. She was happy with my wounds and my mobility post surgery - three weeks.
There also was a nurse there attached to the genetics project, who talked about the process of identifying certain genes and whether I have Lynch Syndrome and what that means for myself and close relatives. Blood was taken for an in-depth genetic testing.
So that’s my current state of play.
My mood has been a little up and down since. My only mistep was I wore joggers to the appointment (my usual size) and didn’t change back to dress or nightdress on return. Mid evening I started feeling a bit queasy and realised that my abdomen was feeling rather constricted with waistband especially uncomfortable. Took off trousers and things eased up quickly. So back to loose garments …. I might purchase a larger sized pair of joggers until things settle down.
Hello Muse
Am glad you got to see your surgeon yesterday and had support from your Macmillan nurse. That sounds good news about your lymph nodes that 18 of them were cancer free. It is good that your nurse is happy your wounds are healing and about your mobility. It's only 3 weeks since your surgery so still early days.
It is natural to feel nervous about the further treatment but good that your nurse said that it was very treatable. Hopefully it won't be too long to wait until you have your appointment with the oncologist to discuss the next steps.
I had chemotherapy and also external beam radiotherapy and it didn't start until 3 months after surgery as my oncologist wanted me to be fully healed. I did not have brachytherapy (internal radiotherapy) as this was not advised in my case. There are ladies on here who will have had experience of all of these and other potential treatments- which ever ones are suggested to you.
When recommending treatment the oncologist will look at all your results ( grade, stage, type etc) and medical history and then discuss with you the benefits and any side effects.
It may be worth making a list of questions before the appointment- I did as find my mind goes blank as soon as I am sat in front of a doctor.
It is understandable that you feel a bit up and down- it's a lot to take on board while recovering from surgery.
I also found loose clothes much more comfortable for the first few weeks.
Hope that you get the chance to rest up and have an easy day today. If you need any more support the ladies on here are lovely and have been where you are today. There is also the main Macmillan phone number if you feel like you want to chat to someone.
Take Care
Jane
