Hysteroscopy Spread Malignant Cells Outside Uterus?

Hi eeyore76 

I'm not sure if there's someone that has experience of this but we, as a group are not medical. I think that your surgical team would be the ones to ask or you could ring Macmillan and speak to an expert. The link is below;

community.macmillan.org.uk/.../ask_the_expert

Hope this helps,

A x

https://www.macmillan.org.uk/about-us/contact-us?_ga=2.40806827.888866867.1679155473-1826027251.1648838048&_gac=1.157944680.1679226639.cjwkcajw5dqgbhbneiwa7pryaf7jkjiyn-trjnnkxilzatx4xefyg_5n8uua5qqyrqpdnjedrx6z1rocpv4qavd_bwe#talk_to_a_cancer_specialist

This is the link to ring, the link in the last email is to email an expert. Sorry for any confusion.

A x

I wished to god I hadn't seen this I am not one to run away from things I usually go in hard and fast regarding research and any avaliable information as I am a retired MHN due to disability but for whatever reason!!! As I am due my second biopsy at the end of March 2023 as at present I am on hormone treatment which is the coil and oral progesterone so that any estrogen does not feed the cancer until I lose enough weight for my hysterectomy. I have fund today hard and tearful after reading this post and researching it, today I feel done with cancer and its physical and emotional damage it has caused today and as usual my beautiful husband is the voice of reason and support

Sounds like you’ve been Googling - and have found out why on this group we advise against it. Google contains all sorts of scary speculative and outdated crap which serves no useful purpose whatsoever. What I did was TRUST my lovely team and TRUST their judgement as to what was needed. They were the ones taking care of me, not Google. There is no way under the sun that I’d have refused my hysteroscopy - the only sources I’m interested in are my team, my CNS and Macmillan. 

Wilma,I’d encourage you to trust the care from your team and their judgement. Glad you have a sensible husband! 

Just to add to this and to look at the other side of the argument - I had a pipelle biopsy and an ultrasound only, didn't have a hysteroscopy. My cancer went from stage 1a to stage 4 in 4 months. I had 2 major ops only 8 weeks apart and then chemo and radio. Would this still have happened if I'd had more tests beforehand..........who knows?

 MarmiteFan59  is right WILMA 08 googling messes with your head. I have NHS experience as well and studied research as part of my degree and therefore felt that I could sift through the nonsense on google and pick out the decent stuff. Not a chance, I still panicked myself after googling what was written on my discharge letter. Doctors study medicine for many years, we should trust that they do their best for us.

A x

I appreciate your answer.  :)  Thank you.  However, my dad was a physician (with a type of chronic lymphoma that required many trials in treatments) so I typically look at trial data versus Google sites / "outdated crap".  I absolutely have faith in my doctors - as post mentioned, I will be asking them.  Thanks to my dad and how I was raised, I just try to arm myself with as much knowledge as I can so I can advocate for myself.  So glad you have a wonderful husband and team.  Apologies if my sincere request for personal experience caused anyone grief.

So glad you have a wonderful husband and team.  Apologies if my sincere request for personal experience caused anyone upset.  Thanks to how I was raised (dad was a physician with a type of chronic lymphoma that required many trials in treatments) -  I typically research trial data versus random Google sites (Google can be evil). I absolutely have faith in my doctors - as you definitely should, too.  I just try to arm myself with as much knowledge as I can so I can advocate for myself.  I am very sorry if I have added to your stress in a stressful time.

Hi again eeyore76, outdated crap wasn’t the only thing I mentioned - I also mentioned scary and speculative stuff and I personally think what you’ve been looking at falls into the latter category, ie speculative and scary, ie it might and it might not bring a risk, but presumably the possible but not proven slight risk is outweighed by the information it provides, and that’s why with endometrial cancer it’s part of the diagnostic procedure as it means they can have a really good look round as well as taking a sample and maybe doing a procedure (I had a polyp removed during mine). Just to say too that I doubt if you’ll be able to ask about this at your pre op, as the pre op team are typically a general nursing team not the gynae cancer team. I too armed myself with as much knowledge as possible during my diagnosis, op and treatment - I was the annoying patient who asked everything, wanted to know everything, asked about risks etc., but I also trusted my team. And I hope you feel able to trust yours. 

Thank you for the reply. As I'm in America it seems that things are done differently. My preop team will include my actual surgeon.  And after my discussion with my preop team, I will definitely weigh the risks. I just want to be sure I understand all of the risks, and I can make the best decision in my case.  As I am also having D & C done at the same time.  I also now understand that this forum is a little bit different than what I'm used to and is purely for support which I completely understand. I will not bring my questions regarding risks related to procedures. I had hoped to get input from what other doctors may have said during pre op.That was my mistake in misunderstanding the purpose of the forum. Thank you again.