Surgery done

1. Hello Saz26 and thanks for the update, you're in limbo now for a while till they give you the results, hopefully it's  like mine and contained within the polyp and still stage 1a. Just take it gently and if you feel up to it a little walk every day will keep you mobile and fresh air clears the brain too! My histology came back exactly 3 weeks later and the lovely nurse rang me with the results and read the letter out to me in which the surgeon wrote the results were ' quite reassuring ' which was so good to read. Wishing you a good recovery x

Hi Saz26 

Pleased your surgery went ok, take it easy and look after yourself during your recovery. Best wishes for your results.

A x

• Thanks Mad yes when I read your story we are following the same path just one year later! I still don't know if I'm clear cell or serous just yet. My daughter is doing my daily injections which is great and I'm taking the pain killers and lactose syrup and everything is working well again bladder and bowel-wise. The five tiny wounds are healing well too and I'm walking every day a little bit further with our dog x 

Thanks sistermoon x

Hi Saz, well done for having your op and glad you’re making progress!  I’m glad you’re getting out and walking - just making sure that your little dog is either off lead on walks or that it’s not you holding the lead? As holding a dog lead is something that it’s best to avoid for a few weeks afterwards.

Glad to hear that your surgery went well. 

Dear Muse, I’ve just seen that your surgery was cancelled last week. I’m so sorry, you must have been really upset getting all ready into a gown and then being sent home hours later after all the waiting.  I had a few dramas I didn’t share earlier. I hope you don’t mind me sharing now? The operation bed cable was broken so had no power. I had to wait 40 mins while they found a new bed. I didn’t realise I’d be having a spinal anaesthetic like an epidural until I saw the anaesthetist but it went ok. I did get to see the robot which was fascinating. They took three attempts to get the cannula in as my veins are shot from previous chemo. My left arm now is black and blue.  I then got left lying in recovery for four hours with no catheter as I was supposed to be going home same day. There was no space on the short stay unit.  I was drinking loads and eating but unable to get up. By the time I got to ward my bladder was so full they were worrying about permanent bladder and kidney damage. I asked to stay in and spent the night and whole of Wednesday walking around the ward to get my bladder empty, otherwise they were going to put another catheter in for a week. The final ultrasound at 4pm was low enough so I could go home. On the plus side my surgery went well, the nurses were wonderful and all that walking meant I didn’t need the Nora Batty stockings! I also am walking well around the house and my bladder is back to normal. Lots of love and best wishes for next week I do hope it goes ahead without anymore delays or dramas and we can move forward together in this difficult journey. My daughter is looking after me and says we are warriors xx