New direction, not the one I wanted

I'm so sorry for you and your family to have to deal with this is brutal. Have you asked about immunotherapy, some ladies have done very well on this, if you type it in the search bar it may give you some results, hopefully someone having this or on a trial will be a long to connect with you. Take care xx

I hope this link works for you 

www.cancer.gov/.../research

Thank you!

The treatment I have been referred for is immunotherapy...it was described to me as extending life by a few months. I will definitely look into this even more now. I will be treated at the Royal Marsden, and will make it clear I will take any trial on offer!

Thank you for replying. I read it as I cried in Sainsburys this evening! What a rollercoaster!

Royal Marsden are brilliant in this field, there are always new things they are trialling, yes I would be like you too and grab anything else on offer. Bless you as you try to understand this journey you didn't choose to travel . Take care and do reach out to us if needed xx

Hi JB2022 I’m so very sorry to read your chemo didn't work for you either. I was given that news 5 months ago. I was offered immunotherapy which I've been on for 4 months, Pembrolizumab and Lentavinib.  It's proving very successful for some cancers, its a new treatment for our particular variety. 

I found it hard going, very weak, the worst of the side effects After cycle 2  and 3 I was hospitalized with acute cholecystitis (10 and 7 days) which fortunately I'm ok now.

Ask your consultant about it. I pray you'll be suitable and it will work for you.

Hugs, Barb

Thank you! This is exactly the combination I am having. 

This has made me smile. Are you at The Royal Marsden too? X

No I'm at Pilgrim Hospital in Lincolnshire. I think it's the first in Lincolnshire . Lots of unknowns but one step at a time. 

Glad I was able to make you smile.

Hug, Barbara

Hello

sending you lots of love and positive energy.

my mums been treated at the Royal Marsden.  She receiving immunotherapy- Atezolizumab.   Proving to be effective.   Please ask about this drug.  Lots of love xxxxx

Thank you! I feel VERY lucky to be referred to RM. I will definitely ask about that treatment. X