I have a grade 3 adenocarcinoma and am waiting to get a pelvic MRI prior to hysterectomy. My surgeon usually does lymph node clearance routinely for Grade 3 but the thought of getting permanent lymphoedema horrifies me. I also have MS and, although 20+ years after diagnosis I am still mobile without assistance. however, the thought of anything impairing my mobility is unacceptable to me. It seems that a certain amount of post-hysterectomy radiotherapy will be inevitable and I got the impression that more extensive radiotherapy could be an option instead of having all the lymph nodes removed.
Can anybody share their experience please?
hi MarmiteFan59
Yes, he does a clearance. It involves a longer surgery. If he is leaving them he will take any he sees that are enlarged.
I feel incapable of making a decision!
Sounds like he may check and remove any enlarged ones rather than remove them all? I feel for you in your anxiety over this but I’d suggest trying to hold it in your mind until after your pelvic MRI. You don’t have to decide yet. Are you in contact with your CNS nurses?
Thanks. I'm feeling very anxious today. I will contact my CNS.
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