PDR BRACHYTHERAPY

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I recently completed my PDR Brachytherapy treatment at the Weston Park Cancer Hospital in Sheffield. I thought it might be helpful if I summarised my experience as it appears from posts on this forum that it's not a common type of treatment. I was admitted on 27 December and had various blood and other checks. The procedure was explained to me, I was given an enema at 11.00 pm and was 'nil by mouth' from midnight. I was taken to theatre about 8.00 am the next day to have the applicator  inserted in my vagina. This was done under sedation so I was aware that various doctors were doing stuff but didn't feel any discomfort. From this point onward I had to lie flat and still until the treatment would be completed.. After theatre I was taken for a CT scan, to help determine the treatment plan, and shortly afterwards taken to the specialist brachytherapy room. I was advised that the treatment would take 21 hours so almost a full day, and all whilst I had to lie still and flat!, Initially the experience wasn't too bad, I wasn't that uncomfortable, the nurses came in every few hours to turn me and massage my back and I watched South Pacific on the TV!  They also briefly switched off the machine whilst they unclamped my catheter to allow me to wee. When the machine was switched on the catheter had to be clamped. They also brought me sandwiches and drinks in mugs with spouts as they were the only things I could manage in my flat and still position. Whilst I coped quite well for about 6-8 hours, I then started to get lower back ache which got progressively worse so had to succumb to pain killers. The machine was finally switched off at 9.00 the following day and the applicator, catheter and link to the machine were gently removed by the nurses. It was a challenging experience, more so than I imagined. The worst part was the back ache and the restrictive position I had to adopt over such a long period of time. The nurses were very caring, supportive and encouraging but I was so relieved when it was over. I was taken back to the ward where, blissfully, I could finally sit up. The back ache eased almost immediately and I didn't have any adverse effects. I've tried to give a factual account of the experience rather than overly dramatise it. I expect some might tolerate it better whereas others would find it more difficult  than I did. In the grand scheme of things if this treatment reduces my chances of recurrence and improves my chances of recovery then, in hindsight, it will have been worth it. I even came home with a belated Christmas gift, a fetching box of dilators! 

  • Hi SH53, thanks for posting so soon and so clearly about it all - and well done. As I understand it, this type of brachy treatment is usually only done for cervical cancer - did they happen to tell you the reason you were having this and not the sort of brachy which is normally done for endometrial cancer? Also is this a one off or will you have any further sessions? 
    Ah yes the dilators! I’m still doing mine once a week and my oncologist registrar yesterday said it was working as no sign of stenosis.

  • The consultant oncologist recommended it as he said the vaginal vault was the most likely place the cancer could return to first. I have a telephone appointment with him in early February. Thankfully, it was a one off treatment! Another consultant oncologist I saw recently was hopeful I wouldn't need further treatment. I suppose different hospitals use different approaches and treatments depending on the individual patient's circumstances. After chatting to the nurses, and reading the literature I was given. this seems to be the type of treatment favoured by Weston Park. The Nurse recommended leaving it 7 days before using the dilators - I am a little bit sore -  so next Thursday will be 'D Day'!

  •  Hi SH53 

    I am surprised they did not mention Chemotherapy at all. It is a minefield how different hospitals from different areas treat this stage and grade as I remember at pre assessment the consultant mentioned that I would be having Chemotherapy after the op and also straight after the Operation when he came to discharge me he again mentioned the Chemotherapy so I was very surprised when seeing the consultant when recovered from hysterectomy that the MDT had decided to give me the choice whether to or not have it.....that was the worst for me as I struggled to make my choice and had lots of beneficial advice from our other lovelies here. Wishing you well on your onward journey and a happy healthy New 2023 xx

    Madesp 
  • FormerMember
    FormerMember

    Hi SH53,

    Thank you for the information and well done on completing the treatment. It sounds challenging and uncomfortable. Wishing you all the best going forward,

    A x

  • Hi SH53 I had PDR Brachy at western Park it was salvage treatment as I had recurred. It was pretty much as you described.  I think it is their preferred method for Brachy treatment. Hope things go well for you. Dawn

  • Hi Chickplc, that’s interesting that you had PDR brachy for recurrence, whereas SH53 had it for treatment for her stage 1a grade 3 - I’m wondering if this is why she has it, as she’s grade 3? Treatment seems to be different at different hospitals sometimes.

  • Hi I was Stage 1a grade 1 luckily it was 5mm and was removed via biopsy I asked about the tumor and was told that my scans were clear and no tumor could be seen.  the Brachy was to protect my bowel and bladder. Unfortunately I have long term effects I have radiation proctitis 

  • Hi Chickplc, sorry to hear you have radiation proctitis. What are the symptoms? It's a week since I was discharged and I still have some soreness around the opening of my vagina. I've been sitting on some small ice packs covered in tea towels to try and ease it! Bowels and bladder seem OK, just all a bit undignified. 

  • Hi SH53, sorry you’re having some discomfort - have you mentioned it to your CNS?

  • No not yet. I will if it continues.