Hello xx

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Hello everyone, I am new to this and not great at asking for advice so please bear with me.

So...a little background first...

I am 39 and studying to be a student nurse (albeit currently on a break thanks to the big "C"). It all started last year when I was sexually assaulted walking to my car from uni. It was quite bad as when he had "finished" he then assaulted me again with a broken bottle. Because of trips to SARC and invasive tests, etc, they later found I had stage 2 uterine (womb) cancer. I was initially treated with 4 months of oral chemotherapy and hormone tablets. During this time it spread and became stage 3b. I recently had a total hysterectomy bso. Last week the nurse rang me to go for a CT scan and then rang on Thursday to say that they found cancer cells in my pelvic wall. So begins another month of high dose oral chemotherapy. I sort of switched off on the phone as I like to deal with things in chunks (and quite frankly would rather not know everything - slightly tricky considering my studies though! lol). The problem is, everyone is asking me what this new diagnosis means, survival rate, etc. I dont have any other information to offer you im afraid. I would ask Dr. Google, but I know better than that. So, I suppose my question is...does anyone know anything about anything lol?

Sorry for the long post.

Take care everyone xxx

SH53 over 2 years ago

Hello Rose Quartz. I'm so sorry to hear of the very difficult time you've had over the last year. I'm relatively new to this group having been diagnosed in late July and am now 7 weeks post total hysterectomy. I've found the group very helpful and supportive especially when you have lots of stuff whizzing round your head. I'm sure you'll receive similar advice in due course. In the meantime if you have a designated CNS (Clinical Nurse Specialist) it might be helpful to talk to them and discuss your concerns. I have found mine very informative and reassuring.

FormerMember over 2 years ago

Hi Rose quartz,

Sorry to hear about your recent events, that's a lot to deal with. Have a look on the Macmillan site for the online endometrial cancer booklet. I found this really useful and easy to understand. Best wishes for your treatment,

A x

Madesp over 2 years ago

Hi Rose Quartz I'm very sad for everything you've been through as I have a daughter your age and it could be my daughter this had happened to. I think it's best you call up your CNS and ask them to go through the histology reports with you or ask when your appointment is with the oncologist. You say you would rather not know everything so maybe write a list of questions of what you do need to know and deal with that for now. I am the sort of person that WOULD want to know as it helps me deal and plan ahead but I appreciate not everyone can cope with this!

Please do ask anything else you want we will try answer best. X

Madesp

Robin27 over 2 years ago

Welcome to the group Rose Quartz, You have been through so much bless you. I think that the lady's have given great advice to ask your CSN or the Macmillan or Cancer research sites for advice.

We are here for you anytime that you want to chat or vent. This is a safe place and the ladies are so supportive.

Please stay in touch and let us know how you are doing.

Big hugs Robin x

Rose Quartz over 2 years ago

Oh my gosh, thank you so much everyone for your kind words, made me quite emotional. I really appreciate it

Nanabear over 2 years ago

Oh my god girl, what an ordeal!!! The ladies on this group have all got brilliant listening ears, we may not have the answers but we’ll support you in whatever way we can. I’m also a nurse(retired) so I know what a bit of knowledge can do to your head‍ anyway wishing all the love and luck.

marilyn xxx

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