Travel and costs during treatment

Hello Chewie

Have you considered asking the radiotherapy dept if they know of any accomodation they would recommend. 

When I was going through radiotherapy my accomodation was arranged through the hospital/radiotherapy dept as I was living on a scottish island. The accomodation was in the nearest clan haven and they kindly provided a taxi to the appointments.

Its all very much dependant on where you live and facilities available. 

I'm sure if you enquire at your hospital appointments someone would be able to help, at least with local information.

I am sorry to hear you have had to go through this, its not nice at any age, but for someone so young its very challenging. I hope you can get some help somewhere.

Hi Chewie and welcome to the group. Well done for already having had your surgery and also almost being done with your chemo. Do you have contact with your CNS? It’s worth asking either them or your nearest Maggie’s centre what provision your radiotherapy hospital makes for people in your situation. At my hospital some patients were given accommodation at the local Jury’s Inn hotel Monday to Friday during radio. 

Hello Chewie, I second what Shellie69 advises and call the radiotherapy department or the hospital/oncology that treated you and ask for help! I never had to use it thankfully but I do know that my hospital do have volunteers and special cars for transportation of patients from their homes to radiotherapy department which is done at another hospital 1 Hour journey away. Also you could ask if the radiotherapy Dept have advice on how to get patient accomodations at the hospital but you will have a lot of free time doing nothing and it can be lonely as radiotherapy treatment is very quick. The waiting around is longer than treatment times which roughly is a few minutes.

There's a lot to think about, when my son had radiotherapy he also had to go everyday and we arranged a timetable with family and his friends who were willing to help, to take him on different days that way it made his daily  journey more bearable having different people to talk to but I appreciate not everyone has this option, I'm just trying to open up few more ideas to you but whatever happens I do hope you manage a way to get there safely and hope the time flies by and you're through with treatments. Xxx

Hi Chewie 

Have you tried calling the Macmillan helpline for advice? I typed in travel costs on the home page site to find out if anyone else had found help with this. It might be worth you looking for ideas.  Below is a post i saw referring to a HCT 5 form, i dont know what this is to be honest. I hope it helps but definitely think give the helpline a call.