Serous and Endometroid Endometrial Cancer

Hi SH53, could I ask what specifically you’re anxious about? Is it maybe the prospect of adjuvant treatment or longterm prognosis or something else or everything?

I know you can't rule out further treatment after a hysterectomy so I suppose it's mainly the long term prognosis and the associated risk of the cancer returning at some point. When the surgeon advised that my scans were clear I felt somewhat relieved, plus she suggested I hadn't had the cancer very long. She did recommend testing for Lynch Syndrome, due to something in the biopsies, but she didn't mention that the cancer was a mix of serous and endometroid endometrial cancer which on reflection seems a bit odd.  I only found out about this when I retrieved the electronic letter which was sent to my GP. I''ve e mailed my CNS - it was too late in the day to phone - so hopefully they can clarify things a bit. 

Hello SH53  and warm welcome to this group.a

I am so sorry you find yourself here but you will find far more first hand experiences info than any textbook stuff.

I like you was SHOCKEDTO find out at pre op assessment that my cancer was SEROUS. 

When I hasd asked previously they had told me it was unsure what 'grade' it was. At pre op assessment one of the Surgeons was amazed when I asked what type of cancer he thought I had,. ' Have they not told you? It's Serous high grade cancer'. 

I thought to myself that was one cancer I didn't expect to have, I had previously read up on the difference in the grades and types and I already knew the Serous was as bas as it got!

But don't dispair......Mine was initially graded at Stage 1a and Grade 3....and glad to say it stayed at that stage so all I needed to do was decide what adjuvant treatment I would have as they had offered optional chemo, but recommend I should have 3xbrachytherapy.

I have my next check up/blood tests with scan in October and then 3 monthly from thereon. I feel good now that all treatment is over and have just returned from a good holiday.

Please read my bio by clicking on my username to read my journey and please feel free to ask away....

Take care x

Thanks for your advice and support. It's quite a rollercoaster of emotions. I was feeling reasonably optimistic until I read the surgeon's letter and then I was rather shocked  She had discussed the possibility of Lynch Syndrome, which was slightly worrying, and I'm currently awaiting testing for that. It's reassuring to hear similar experiences, especially when the outcomes are positive. I've had to cancel a much anticipated trip to New York in late September but in the spirit of positivity I've transferred it to September 2023! 

Hello and welcome, SH, I'm new here as well. Yes, it certainly is a rollercoaster of emotions, and the endless waiting for results can be so unsettling. I got diagnosed on 4th August and have my pre-op assessment on 6th October. My CT scan came back clear, but I've not been told what type of endometrial cancer it is, other than that it is grade two and I'd probably need some brachytherapy after my hysterectomy. How did you access the email to the GP? Through the NHS site? I'd like to find out myself what has been written up in the reports, so I can have a better understanding about this, as cancer runs in my family. 

Hi, I received an electronic copy of the letter which was sent to my GP from the consultant. I've had lots of stuff sent via,this method so, initially, I  missed this crucial one. I felt much better when the consultant told me that my CT and MRI scans were clear. But now it appears that I have serous as well as endometroid endometrial cancer I am, understandably, quit worried.

Hi Sabine, I have an App called My Medical Record, which my hospital uses, and I receive appointment notifications, copies of letters to my GP etc via that. I also usually get a hard copy in the post too.

Hi MarmiteFan, thanks, I will look into that. It's just better to actually see things in black and white, as questions always seem to arise after appointments. 

Hi, SH, I'm so sorry to hear about your diagnosis. You must be so worried. I'm glad we can all communicate via this forum. I don't want to worry my family and always try to put a positive spin on things. But I do worry and wake up in the middle of the night. My CT scan is clear too. I couldn't get an MRI, as I have a pacemaker for total heart block. so I'm totally dependent on it. I've not seen any letters or reports, just verbal info, so I really want to have it in black and white. I have emailed the hospital to get the letter. What grade did you get? 

I haven't been given a grade yet just a staging of stage 1 based on both the MRI and CT scans being clear. I'm guessing that, with the serous element, the grading will be higher.