What happens now?

Hi mumsy53, I totally get where you are coming from! My husband was told he had bowel Cancer and we around 3 weeks back and we are going thought exactly the same waiting game! Having worked for the NHS in Pathology for over 20 years I thought I understood how MDT’s  work, but now seeing the pain of what seems like endless waiting for patients and their families really puts things in a whole new light! 
I wish there was something I could say that could make you feel a little less anxious, but I 100% know exactly that this limbo is so difficult!  A plan of action of how we are going to move forward would help us come to terms with the whole ordeal somewhat I feel! Sending you love and strength, and hoping we both get some news soon xx

Hi Mumsy53, the waiting is so stressful isn’t it! If your MDT meets on a Tuesday and you didn’t hear yesterday, it suggests that your results didnt arrive in time for it - so then I imagine you’ll hear next Tuesday, either by phone or at an in person appointment. A few days after my MRI, I was phoned giving me a face to face appointment and it was at that that I got my predicted staging result. No harm in phoning your CNS to check re when you might hear.

Hi . Mumsy53 and a warm welcome to the Online Community. You'll find a lovely group of supportive ladies who have all been exactly where you find yourself now. Any possibility of cancer diagnosis brings all sorts of stress and fears and if anyone can hold your hand and reassure you we will as you’re not alone in this. Between us we’ve accumulated lots of knowledge which we’re happy to share.

We all agree the waiting drives us mad. I'd give your Macmillan nurse a call, it's always a good idea to establish a good working relationship with these ladies who'll become your best friends.

It’s always helpful to others if you write a little something (or a lot) about yourself and how you came to find yourself here. Why not take a few moments to update your profile. It's always helpful for us to read if we want to ask you questions and you also won't end up repeating yourself. You can enter it into your profile (click on your username and select “Profile”) . You can amend or update it at any time. If you’re not sure what to write, just click on my username.

If you want to ask any of us any questions please come back and do so. There's always someone around and we can offer a shoulder to cry on, a hand to hold or listen to a rant, we’re here for you.

It might also be a good idea to download this booklet Understanding Womb (Endometrial) Cancer. I found it really informative and helpful.

Click on the link I’ve created to find out more information covering diagnosis and treatments for Womb cancer.

You might also find this link to what to take in my overnight bag useful for when you have surgery.

You can speak to someone in confidence by calling Macmillan Support on 0808 808 0000 - 365 days a year 8am to 8pm It's free from mobiles and landlines. The friendly team are waiting to take your call.

There is also an Ask an Expert section, but you should allow two to three working days for replies from our expert team.

Sending you welcoming hugs, Barb xx 

I was referred to the regional centre who would be taking over my treatment from the local hospital. I got a letter off them 2 days after I’d seen the local consultant.. it was a 4 week wait but it seemed like forever. But I’ve now been, had all my pre op work done , and now just waiting for a date which I was told will be in 2-3 weeks. As has been suggested give your CNS a ring. My new one at the regional centre rang me 2 days after I had my appointment to see if I had any questions or needed anything explaining further. Good luck x