Feeling a fraud AND concerned! Jumbled emotions!

  • 15 replies
  • 86 subscribers
  • 1759 views

Its strange how one minute I am chilled and the next I feel so low.

I  feel a but of a fraud saying i have cancer, i do but type 1, 1a with an excellent prognosis ( some questions over a single lymph still) and hopefully’just’ a hysterectomy. So many people have to go through so much treatment thats much worse.

I hope i don’t sound disrespectful or weird but i feel so guilty saying i have cancer . I have been told off for saying Cancer Lite! I keep reminding myself to say Treatable Cancer, when i start telling folk that is. Or does anyone have a better suggestion. 

Also regarding the single questionable lymph node? How can that happen if 1a ? Also VERY concerned they would want to take lymphs to check, so nervous about potential swelling. I know its odd but I have a face even my mother struggled to love but my best feature is my pins ! So vain! What a head mess this all is. 3 more sleeps before i get full oncologist report  and it can’t come soon enough. Waiting is a million times worse than knowing. I would so appreciate any experience on single lymph node involvement, good news and not . Thank you x 

  • It becomes stage 3 if cancer is found outside the uterus. Treatment depends on individual hospital recommendations.

  • FormerMember
    FormerMember

    Hi Lancslass,

    I hear what you're saying and have been there myself but don't feel a fraud, a cancer diagnosis is not to be taken lightly, whatever the staging. When I was diagnosed in clinic I was shocked and worried. However, I was later advised by a trusted professional colleague that hysterectomies are very common and the cancer is usually contained to the womb. I then felt that my worries were silly and that this was just going to be run of the mill. Get it done, back to work.

    Fast forward a few apts, tests and scans and I am where I'm at now. It all got out of hand very quickly for me.

    I sincerely hope that your staging stays at 1a and that everything is straightforward for you. I also understand that joking about it can be a coping mechanism as I do it myself and have a dark sense of humour. My intention is not to worry or scare you but don't let anyone (or yourself) be flippant about it. It's a lot to take in and I can see that you are trying to process it. Take your time and accept all the help. Very best wishes to you, take care,

    A x 

  • Thank you so much for taking the time to reply. Its so comforting to have warriors like you to confide in, ask advice of and for me to use your experience and wisdom. I am touched beyond words. 

    Having read your bio I can see you had/are having a tough time and I send my heartfelt gratitude for sharing your experience and especially for being honest. I needed to hear it. 

    I will be sure to update once I know more. Sending hugs and love in my awe x 

  • Hi . I echo 's reply. I still think I'm looking in at what's happened to me is someone else's story but have to give myself a shake. The bittersweet irony is my bestie's just had her hysterectomy and the all clear and my story's going in the opposite direction.

    Life can be such a bitch but being honest is better than sugar coating things. When my prognosis changed to incurable I initially wondered if I could still be a Community Champ here but decided it's best to portray both sides of the coin.

    Sending hugs, Barb xx


    Community Champion Badge

    Womb cancer forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    "Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett

  • Hi Barb

    I’m very glad, as I’m sure lots of the ladies are, that you stayed on as community champ. I used to spend a lot of time avoiding speaking about my recurrent cancer in the cervical group, but since I became a community champ and needed to complete my profile, I’ve been more upfront.

    I didn’t want to scare anyone just starting out, but it really is better not to sugarcoat all the time but be realistic in gently telling others there’s unfortunately no guarantees, and it’s not all straightforward. Hope you are doing well at the moment. 

    Sarah xx


    Community Champion Badge

    Cervical Cancer Forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm