Newly diagnosed

Hi Lancslass, welcome to the group! Well done for posting and for also being super organised in typing up a profile! I had a failed hysteroscopy and then a successful one under general and like you was looked after very well! Bless you with your numb feelings - we all find our own way to get through this roller coaster ride. I was tearful the day I was told (over the phone) but become pragmatic and even a tad stoic after that, because that’s my way. Regarding the symptoms you have, I didn’t have any symptoms other than very slight pink spotting, You should have been given the contact details for your CNS team and I’d recommend giving them a call on Monday to chat with them about what you’ve been experiencing. It may not be connected to this at all, especially the bloating - that could be a food intolerance, for example. 

Thank you for your reply. I haven’t been given a CNS yet, but I will get in touch when I do. Thank you for the tip. its so annoying that every ache and pain is sinister, at least in my head! x

Hi again, I was given my CNS’s direct phone number when I had my phone call telling me I had cancer. I’d suggest giving your consultant’s secretary a ring on Monday and asking. It’s important that you have the support available. My CNS team were invaluable for questions, advice, asking about appointments, results etc as they have easy access to the consultants. 

Hi Lancslass and welcome to our lovely supportive group. I think we can all empathise with the numb feeling, this cancer thing happens to someone else, not us. My only symptom was a very slight pink spotting. I was long past the menopause. I had no pain, nor bloating but some ladies here did have so I hope they'll be along soon to answer. Often the bloated feeling is an anxiety issue. The MRI will reveal more to the MDT.

Your CNS will probably be allocated after your MDT on Wednesday. They are exceptional ladies and no question ever seems to be too much trouble for them. I'm lucky, I've got 2 - they're always quick to reply to get back to me. (They normally work Monday to Friday)

If you want to ask any of us any questions please come back and do so. There's always someone around and we can offer a shoulder to cry on, a hand to hold or listen to a rant, we’re here for you.

It might also be a good idea to download this booklet Understanding Womb (Endometrial) Cancer. I found it really informative and helpful.

Click on the link I’ve created to find out more information covering diagnosis and treatments for Womb cancer.

You might also find this link to what to take in my overnight bag useful for when you have surgery.

You can speak to someone in confidence by calling Macmillan Support on 0808 808 0000 - 365 days a year 8am to 8pm It's free from mobiles and landlines. The friendly team are waiting to take your call.

There is also an Ask an Expert section, but you should allow two to three working days for replies from our expert team.

Sending you welcoming hugs, Barb xx 

Hi Lancslass

I'm sorry that you find yourself here with us but you have most definitely found a lovely group of wonderful supportive ladies. There is a wealth of personal experience and advice to offer and even if we don't have the answer we can point you in the right direction to get them.

Personal I didn't get any pain just bleeding. Thus was the same way as I did 6 years previous when I had 2 polyps removed, I was shocked and stuned too when it turned out to be cancer. I'm sure someone will be on soon who also had pain for you to talk to about that. 

We are here for you. 

Hugs Robin x

Thank you Robin, feeling less overwhelmed after an online chat on here, and you lovely lot xx

Thank you, i will follow your advice get the booklet x

Thank you, I hope to get more info next week. Its very kind of you to reply, feeling better already x

Lancslass, whilst you may well be told about your CNS’ contact details when you get your MRI results (which may get there in time for this Weds MTD and may not), you’d be perfectly entitled to ask your consultant’s secretary for their phone number (and email address even) beforehand, ie now, for support. Mine were invaluable in the early days especially as they not only listened to me and supported when I was having a wobble, but also chased results for me and asked my consultant questions for me. 

Thank you for your reply. It’s encouraging to know ai will have a CNS helping me through. Can I ask if they staged after MRI or waited until after surgery? Just had a call for a CT scan today! Eeck!