After 24 weeks since initial red flag referral and after meeting 7 different consultants I have finally been given a date for surgery. (Delays caused by being told too young for cancer -34 yrs-, to initial consultant going on a month's holiday, being transferred to another hospital, being told now I have cancer im too young for treatment, being transferred back to original hospital, general lack of co-ordinatation and care)
The last consultant I saw and according to my pre op nurse will be the surgeon on the day has said he will perform the hysterectomy vaginally only. I.e no external cutting at all. Has anyone had this style of hysterectomy performed for womb cancer?
From my own research I can see that it is called the gold standard method for a hysterectomy in all benign conditions but there's not alot of info for this method in cancer patients.
I was also told that if they cannot remove the womb via the vaginal canal (never had children) they'll abandon surgery and insert a coil to medically manage the cancer.
This is not what I want and would rather they performed it laprasopiclly or even open surgery but it seems if I refuse this date and proposed treatment I'll be left waiting weeks and weeks again.
Hi Hupomone22 and welcome to our group. Between us we've now got a lot of first hand experience and are happy to share and support.
Not being medically trained I'm a bit confused! I'm not sure of the difference between a vaginal hysterectomy and a Laparoscopic - I'd have thought they were one and the same. My womb, fallopian tubes and ovaries were removed via my vagina and I had 4 small incisions on my tummy. Top & bottom, left and right of my belly button. I've also not had children but this didn't present a problem.
It might be a good idea to give the nurses on the Macmillan support helpline a ring on freephone no. 0808 808 00 . They may be able to advise you.
If you want to ask any of us any questions please come back and do so. There's always someone around and we can offer a shoulder to cry on, a hand to hold or listen to a rant, we’re here for you.
It might also be a good idea to download this booklet Understanding Womb (Endometrial) Cancer. I found it really informative and helpful.
Click on the link I’ve created to find out more information covering diagnosis and treatments for Womb cancer.
You might also find this link to what to take in my overnight bag useful for when you have surgery.
You can speak to someone in confidence by calling Macmillan Support on 0808 808 0000 - 365 days a year 8am to 8pm It's free from mobiles and landlines. The friendly team are waiting to take your call.
There is also an Ask an Expert section, but you should allow two to three working days for replies from our expert team.
Sending you welcoming hugs, Barb xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
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