I had my total open hysterectomy including my ovaries and tubes in may 2021. Ever since my op I have had horrendous problems with my bowel. I have urgency, often uncontrollable diarrhoea and am bent double with pain. I went for my three monthly gynae check up today. At the risk of tmi when the consultant was feeling round my vagina it made me feel like I was going to poo. Is this normal??
Hi Deborino, I am exactly the same nearly two years on. My GP has organised a colonoscopy which I have in 2 weeks time. So hope it is not a case of here we go again. I too wonder if other people after suffering with this after a hystetectomy.
Hi, Thank you for sharing, one year on and I have similar problems. I invested in a good loo brush. Pelvic floor exercises seem to have help control the urgency, but I cannot sit for any length of time without my tail bone aching, a cushion helps for a few extra minutes. My current experiment is trying to cut down on my consumption of fruit in the morning... When I mentioned my bowl movements to my oncologist she was not worried and recommended loperamide/imodium for the odd event. I carry on bouncing from worrying to acceptance that this is how life will be.
My GP gave me loperamide too. My sarcoma consultant is going to ask my GP to arrange some tests. He said that a year is too long for the bowel to be upset by the surgery even though I had lots of adhesions from two caesareans. I've had to buy a radar key as I'm constantly worrying about being too far from a loo.
You can get a Just Can't Wait card from Bladder and Bowel Association which is useful in shops and pubs if you are caught without public toilets nearby.
Very early days for me but I was already an IBS sufferer (I've been a Mebeverine and Lansoprazole user for a looong time) and I have had a lot of bowel issues since my op. It doesn't hurt to actually go to the loo but just before I'm often bent over. It's weird as with that pain I also have a kind of numbness and less sensitivity in feeling. It's hard to describe. I've found I'm having to have a much plainer diet than usual. I had a bit of cake yesterday with lactose in and I'm paying for it today - my intolerances have shifted up a notch. I do wonder how it effects the biology and position of the bowels. Sorry to hear you're still suffering a year on though. Sorry.. not much help but it looks as if this isn't that rare.
Hi Cakenport. I discovered after my hysterectomy I'd developed diverticulosis which meant I had to switch from fruit, fibre, wholegrain which caused my gut to be a fermentation vat to more bland food.
I think the bowels do take quite a long time to settle down. I do remember one lady here provided a picture of how we should sit on the loo with feet on a stool therefore knees much higher. I suppose if you think of it before loos were invented we used to squat.
Hope things get sorted, Barb xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
"Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007