Hysterectomy Debrief

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Hi Everyone

It's Day Three of my recovery today. I thought I would check in to let you know how it went.

Surgery was on Friday very early. I slept OK actually and I was surprisingly calm heading to hospital at 6.45am. I can only thank you all for that as I felt so mentally prepared. I checked in to Day Surgery and only had to wait a short while to fill in forms and get kitted up with socks and talk to anaesthetist. I gowned up and had a long walk to pre-theatre down a few floors. I chilled out here for about half an hour talking to the nurse and porter. By this time it was about 8.45am? There was really nice music playing here, the kind of music you have when you're sat on a plane waiting for them to take off. Mmmmm.

I didn't have any cannula in at this point but got wheeled into anaesthetic room. We pretended I was going on holiday to Thailand. They gave me some gas and air and put cannula in and I was told to say when it felt like I'd had just a bit too much G&T. I remember nothing else other than waking up in a large recovery ward. I think it was about an hour and a half later? I had no catheter in. This had been taken out before I woke up. I was uncomfortable but not in agony (some of the other patients were really struggling and screaming - no idea what they had had done!). Someone was sat with me the whole time. even though he was looking for cars on his ipad (LOL) and I felt looked after and he was sweet. Here's where the problems started. As you know, I was due to go home later that day. I have always had issues with blackouts and low blood pressure and my pressure dropped very low and there was a bit of a kerfuffle. I don't remember much again for a bit but when I woke again my bed had been tilted so my feet were up.

I obviously had had no food since the night before and I know that's a big trigger for me. I was also concerned that by this time it was 1pm and my husband knew I'd gone down to theatre at 9am and would be worried. I asked for them to bring my phone and my bag. There was no food allowed in that ward but they got me some bourbons and I was allowed the lucozade I had packed myself. This made me feel a bit better. My husband had been very frightened and was on phone to reception when I text him - he was so relieved!

Consultant saw me here and said op had gone extremely well. My ovaries looked normal so they had been left in. He was keen for me to go to ward... but they had no beds! I was stuck there all day and eventually got up to ward at 5pm. The ward was quite yucky as it was visiting time and very noisy - some of the patients had just had local procedures and were talking.. A LOT. I was told I'd missed food time but they could try and get me a sandwich. I knew I had to eat but I couldn't stomach it. I asked if they had a banana but they didn't but got me a soy choc pot. I could feel myself getting worse again but it was quite hard to get any attention. My mum works at the hospital but by the time she had finished work visiting time was over and she wasn't allowed to see me but she ran in and chucked two bags of crisps onto my bed and pegged it before anyone saw. Funny now but at the time I was quite upset by this!

I called to go for a wee as I felt quite weak and a kind nurse took me to the loo. As soon as I was in here on my own I felt appalling. My hearing went and I just managed to grab the red cord. I don't remember much after that other than them all apologising they had "man handled" me and I would be bruised. The pain was then really bad. My blood pressure was ridiculously low. It stung to wee but I managed all night after that with them lifting me onto a kommode right next to my bed. They were really good after this and checking up on me all the time - I got their attention! ;)

The consultant came up to ward again to check on me and he didn't seem happy about how the day had panned out and asked me whether I would prefer to stay there overnight - a no brainer! Throughout the night I had about 5-6 turns which they said was Vasovagal Syncope.. nothing to do with actual procedure. I got it whenever I was vaguely sat up. Unfortunately, this meant I couldn't walk and move to shift the gas at all which really built up - that caused a lot of pain and is still my main issue.

I got out about 4pm the next day. I have been told I don't need blood thinner injections, socks can come off as soon as I'm walking around. If anything goes wrong I need to call 111 or go to A&E so no follow up but histology will be in 2-3 weeks. I have been told to expect a bit of blood in about 10 days and this will be normal. But if it's red that's wrong. I have now taken all dressings off. My belly button is gross looking but I've not washed yet.

I am not really in loads of pain but a lot of discomfort and I still can't really move around without fainting although I am sat up. I am bruised and pulled from falling and being caught. Feeling a bit brighter today as I had a better night's sleep and managed to lay down.

The actual staff, surgeons etc. were amazing - everyone was so wonderful and kind but I feel like I have been let down by the poor management, logistics and resources. They tried their best but I feel like the lack of bed caused so many problems that got me off to a really rocky start. 

I hope this helps someone - really the procedure wasn't too scary - it's just the way my body's reacted to the stress I think. My low blood pressure is such a pain at the best of times. I know etc told me to take snacks but I didn't quite anticipate how much that would have helped! 

  • Hi Cakenport, it’s great to see you - I’m so glad you’re out the other side and now home! I’m so sorry that you had such a long wait in the Recovery ward. I was in mine for about 3 hours (I asked them afterwards as I found myself not liking having a big gap in my memory). They had wanted to move me earlier but I was quite disorientated from the anaesthetic and had asked them if I could stay there a bit longer as it was quiet there and I wasn’t ready to be around other people in a ward. I feel for you feeling so battered and bruised, as well as recovering from your op. Hoping that your blood pressure gets back to normal soon and that you feel more able to move around. As you’re not moving much yet, I’d encourage you to twiddle your feet in circles every 5 mins or so when laying or sat down, and also to bend your knee up and then down again several times, also every 5 mins or so. Injections were on my instructions, but I chose to refuse them (apart from my initial one at the hospital) so the onus was on me to get myself active and mobile. I was also told to wear the stockings every day and night for 28 days - but thankfully I was told at my results appointment 14 days post op that I could discard them. I’d suggest wearing yours till you’re well back up to your normal mobility, not just when you’re back on your feet. Do you have anyone to help you at home?

  • Thank you . I am shuffling about changing position often even if I can't walk around much. My husband is here with me and is being amazing and by my side the whole time. He's managed to wash my hair for me (he stood IN the bath and I stood outside and stopped over). Life goals at the mo are to have a shower (I only have over bath kind) and to go to the toilet (I'm resorting to the Lactulose they gave me today to see if that helps). 

  • Bless you! Little steps forward are still forward! I’m glad your husband is there to help you. Hoping you get to have a shower soon - I needed one to wash the pinky peachy antiseptic stuff off as it was everywhere! Every day you will feel a little bit better. I’d suggest keeping your diet light till you’ve been properly. My appetite wasn’t really back the first week or so, so I mostly relied on chocolate soya milk, fruit, cooked chicken or tuna and the odd slice of toast. Try and be kind to yourself as well as patient with yourself, and I’m sure in a few days’ time you will be feeling much more like yourself. The emotional ordeal at the hospital may take a while to get out of your system, as well as the anaesthetic!

  • Hi Oh what a rotten time you had after such a promising start. I'm so sorry to read about it. Still you're home and in the best hands now.

    I'm always amazed, and pretty horrified, to read that patients who often end up on wards at odd times don't appear to have contingency plans in place to feed them! You always have to stop eating the night before and often don't go down to the op until lunchtime the next day so end up not eating for 20 hrs plus. I remember I was only allowed sips of luke warm water out of a cup used for dispensing tablets and that was the middle of a September heatwave. I finally went down for my op at 13.45

    There wasn't a bed available on the gynae ward due to someone leaving later than anticipated so I was wheeled through the hospital to a thoracic ward which was really noisy with pumps and aspirators going all night and people having coughing fits (which sounded revolting!) My hubby couldn't find out where I was as the ward details I'd given him were wrong and no-one seemed to know where I was for a while, eventually he tracked me down but yes, worrying for the hubbys as well.

    That must've been frightening the fainting even if you're used to low blood pressure! At least in the end you got the attention you should have got at the outset. I feel sorry for the Consultant, he must have been frustrated and embarrassed for you.

    Hope you feel a bit better today and the bruises are easing.

    Sending gentle hugs, Barb xx


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  • I am so in awe of all of you and all you cope with. I'm having a big wobble tonight and can't stop crying. I've just had my first shower and it's all too much. I'm so tired and uncomfortable and just had enough of it. I wasn't expecting to be so feeble. I feel pathetic. 

  • Hey Cakenport, you are allowed to have a wobble! You have just had a major operation, and you’ve had a bit of a rough ride afterwards! I’d be crying too! It’s very soon after your op, so it’s baby steps for a while till you regain your strength. People react differently to anaesthetic etc, it messes with you. 

    Dont forget as each day passes it’s another day of healing. Also, I thought I’d mention this. When I had my keyhole op back in 2020 I had no bleeding after the op. Then about 10 days afterwards I went to the loo before bed and the toilet was full of blood. Always happens at night doesn’t it! I phoned my CNS the next day and she said it was probably just the internal stitches dissolving, and to keep an eye on things and call them if it continued. It didn’t, and everything was fine.

    So get some rest, be kind to yourself, and get some more rest!

    Viv x

  • Dear Cakenport

    We have all had those moments and more than once. Be kind to yourself -receiving your diagnosis and having a major operation is a lot to deal with both physically and mentally.  Sending you a hug Hugging

  • Hey Cakenport, it’s okay and totally understandable to feel overwhelmed. You’re exhausted, you’ve had a traumatic experience at the hospital, you’ve had a major op, and some effects of the anaesthetic will still be in your system. Looking back to my diary, I had a hair wash (leaning over the bath) and a half shower (to wash off the antiseptic) and it was exhausting! I hear that you’re feeling weak and pathetic, but this time next week you will be so much better. Each day you will make a little progress and it will all add up. Hope you sleep okay tonight and have a better day tomorrow. 

  • You're not alone please don't feel like it's you and just you....I went through the  wobbles but felt I was being silly telling people,  when their remarks were about how 'strong ' I was being but  all I wanted to say was

    "You should've  seen me an hour ago....."

    You will come through,  it's only just a few days be kind To yourself and if you have a wee cry thats OK too.

    You're doing great   take it slow and you will get there,  this time next week you will be further on and feeling a little more yourself. Take care xxx

    Madesp 
  • Hi,  I have been thinking about you.  I can see how tough it's been and am really sorry you had a rocky start.  We are all here to support eachother.  I know I don't always come across as sympathetic, but trust me, I am.  We all have different ways of showing it.  Hang on in there, and please be kind to yourself xx