Update

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I had my meeting with the surgical oncologist yesterday and it didn’t go quite to plan. I went in thinking I would be told what kind of hysterectomy and when my op date would be. 
we did discuss the type of hysterectomy, uterus, ovaries, Fallopian tubes, cervix and hopefully lymph nodes. My tumour is 8cm wide and 12cm long and has deeply penetrated the uterus wall. To be honest I wasn’t expecting it to be that big and to physically see it on the screen has made this all very real. I was signing all the paper work for the op when I mentioned I was going for my pre op assessment next, dr seemed confused I explained it should have been last week but was canvas I had Covid. Well this changes everything thing I now can’t have surgery for at least 7 weeks I’m devastated. 

  • I'm sorry to read this. It  also seemed such a long time for when I was diagnosed to operation was at least six weeks and in this time I had other symptoms convincing myself it was growing out of control. Also because I didnt know what grade it was, they didn't actually tell me till my pre assessment, it was high grade serous,  I was paranoid and asked the surgeon to have a good look round as I thought it had spread. It turns out that it hadn't moved or grown in that period from MRI/CT scan to the date of operation. Hope this helps keep you calm. I know once you have the diagnosis you just want the thing removed .  Take care and hopefully time passes quickly. X

    Madesp 
  • FormerMember
    FormerMember

    Hi Shoes64

    I am sorry to hear that your surgery has to be put off. It must be hard not to think that it is wasting time.  From reading people's experiences on here everyone's pathway is different and for some there are far more tests prior to surgery which extends the time.

    Look after yourself in the meantime to prepare for surgery.  Walks, good food, pampering, these will help you mentally.

    Take care

    Amanda x

  • Thanks Amanda, yes it does play with your head, went in expecting to be operated on in the next week or two. Because I've recently had Covid it's now too dangerous Flushed

    My delema now is, do I continue working. My family are concerned I get covid again as that would delay surgery even further. I work in a busy hospital ward, the hospital is full of covid patients just now. This is so hard xxx

  • I'm a grade 2 Maddy, just want to crack on now. My head is all over the place, I've hot family and friends pressuring me to give up work and concentrate on being well for the op! Xxx

  • In my opinion you come first,  look after yourself and everything will work its way around. I was lucky that in my administerial work I spoke to my employers and they allowed me to work from home this was between the operation and starting chemotherapy,  because I felt fully recovered from the op but didn't yet have a start date   but I expect this is not an option for yourself? It's not just covid,  what if you got flu or another virus ?

    It's the only solution I can think of, it would keep you safe take care xx

    Madesp 
  • FormerMember
    FormerMember in reply to Shoes64

    I worked right up to my 1st op and they were even expecting me in work for 2 hours prior to my PCR test for surgery. They loaded on the work in my last week and I was in terrible pain then some of the time.

    I would say look after yourself first. There's only one of you and there is always someone to fill your shoes at work.  I am speaking from personal experience.

    Amanda x

  • Grade 2 also  is not as aggressive although I do understand you just want rid of it,  chances are you've had this in your body quite a while so hopefully few more weeks won't make any difference to the tumour fingers crossed  xx

    Madesp 
  • I was fast tracked as tumour has appeared in less than a year. Surgeon not happy we've to delay but what can we do. It's just not safe to proceed at the moment. It is what it is and before I know it treatment will be underway. Thank you Kissing heart

  • This is really hard as I don't like letting people down however I must stay as safe as possible  they will manage without me. Xx

  • Oh how awful some employers are not doing enough what a terrible position to.put you under. My managers are superb right from the start they've said whatever they can do or whatever I need can't ask more than that xx

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