New diagnosis and terrified

Hi Shoes64, welcome to the group and bless you. You’ve been through so much already to get this far and the shock of a cancer diagnosis, even if we knew something was wrong, is a massive thing to grasp and get your head round, combined with all the appointments, tests, waiting for results, waiting for more appointments etc. G2 sounds like it’s grade 2. There are types, grades and stages. They can tell the probably grade from the biopsy and the probable stage from the MRI/CT but the definite grade and stage won’t be known until after the histology from your hysterectomy. If you wanted to, you could ask your CNS about what they know so far, and you can also talk to her about how you’re feeling, I phoned my CNS a LOT during the early days. (I was diagnosed in November and had my hysterectomy in January). Before your hysterectomy you will have a pre op assessment, so that’s another appointment to wait for! You could ask your MDT (or your CNS) if they have any idea time wise how long before your pre op and op, though they may give this to you anyway next week. There’s a good Macmillan link on grades and stages which I will look up for you and post separately - I’d advise you NOT to Google but to stick to reliable sources like Macmillan and anything your hospital gives you. As well as having your CNS (and us) to talk to for support, there’s also a Macmillan help line 8-8 every day and I’ve phoned them 2–3 times. 

Here’s the Macmillan link re grading and staging: www.macmillan.org.uk/.../staging-and-grading-of-womb-cancer

Hi MarmiteFan59

Thank you so much for reading my story and replying I found it really helpful. I’ve spoken with my CNS this afternoon and she was able to tell me the cancer has spread to the Cervix so it’s Stage2. She also thinks I will be told an op date at the meeting next week, so much information my brain is in overdrive. 

Shoes64

When I was told my diagnosis (over the phone) it felt like a fast train rushing through my head and I had to ask her to stop while I caught up as I wasn’t taking anything in. Even when she stopped for a bit I still felt overwhelmed mentally and emotionally - and that feeling used to come over me every day after that but I gradually learned to get it under control a bit better. And you will too. For me it was kind of like learning to adapt to living under a cloud. I recognised too that my fuse was a bit shorter and my tolerance for stress was less. What was right for me was limiting how much research I did in any one day. I also limited who I told as their reaction might add to my own stress. You will find your own way through this. You will have days when you’re feeling positive and other days when you feel overwhelmed - both are okay. Do you have a date yet for your meeting next week? If you’d like to read my story so far, click on my profile.

My appointment is Friday 29th April and yes I totally get that. Some days up and some down I'm still trying to work to keep my mind focused but some days are extremely hard. And now I have Covid xx

Hi Shoes64 

So sorry you've had to join our club, but be assured you will get support and get to speak to lovely ladies on the same journey and hopefully you can gain some understanding of what is happening. My goodness you have had a very rough ride and I feel for you, mine was quite straight forward, you can read my bio at your leisure by clicking on my name rather than me go through it on here. G2, I would assume means grade 2 ? But if course when you've had your Hysterectomy and the body parts go to pathology they can stage it and grade it accurately, so you will know then what treatment (or not) you need.

Everyone says the waiting is the worst and it is. But you have this forum now to rant, ask questions,no matter how small or insignificant you might feel they are, there's always someone on here to answer or just chat, you will have good/bad days and when you can't speak to partner/family/friends, we are here for each other. Ok?

Sending you good wishes for a positive outcome 

Maddy x

Thank you Maddy, yes it’s been a hell of a fight however I’m so glad to have found this forum. There’s days I want to scream and other days I can kind of box it all if that makes sense. I had convinced myself that nothing was wrong so to get a diagnosis of Cancer just floored me/us. So I suppose I’m scared to think too much. 

Karen xx

Yes I understand that. My consultant said nothing too serious going on here...when he performed the hysterscopy but the results told a different story. The nurse rang me about a week later inviting me to return to see consultant and that I could bring someone with me and that an MRI And CT scan with contrast was already booked....this for me confirmed the inevitable that they found cancer. I nearly fell to the floor and couldn't believe it. The waiting was horrible and then to be told they didn't know what cancer type it was was even worse at the appointment was difficult to comprehend. In fact I didn't find out mine was grade 3 till I was at pre assessment before my op. Stay safe and keep positive, I always thinks there's some one much worse than me....take care x

Hi Shoes64. I'd like to my welcome to our spot in the Online Community. As the other ladies have said you'll get a lot of support and advice from the other ladies here and you can ask questions or have a rant, we'll all listen and send virtual hugs.

My goodness your journey here has take much longer than it should have done and you've been shoved from pillar to post, you have my sympathy. 

It's unusual to meet the whole of your MDT team, it's normally your consultant and CNS but the more you can ask questions of is good, ask permission to record the conversation so you can reply and ask any unanswered questions at a later date,

It might also be a good idea to download this booklet Understanding Womb (Endometrial) Cancer. I found it invaluable on my journey. 

Click on the link I’ve created to find out more information covering diagnosis and treatments for Womb cancer.

You might also find this link to what to take in my overnight bag useful for when you have surgery.

You can speak to someone in confidence by calling Macmillan Support on 0808 808 0000 - 365 days a year 8am to 8pm It's free from mobiles and landlines. The friendly team are waiting to take your call.

There is also an Ask an Expert section, but you should allow two to three working days for replies from our expert team.

Sending you welcoming hugs, Barb xx