Waiting for hysteroscopy

Hi BlurryOne, bless you - the waiting is awful and makes the stress far worse.  It very much depends on your hospital and their case load. When I was referred on the 2 week pathway my scan and hysteroscopy were both booked at the same time, one week apart, so that if it was needed I wouldn’t have to wait. I imagine you should hear very soon and really hope you do.

Hi BlurryOne,

After I had two small bleeds I was sent for a Ultrasound and a hysteroscopy. All they found was a fibroid, which apparently shrivel up after menopause and in the consultants words 'Are of  little consequence'. He then decided to do a biopsy, which found the cancer. From then onwards it was quite a chaotic round of scans and tests, but within a month I was admitted and sorted out. I had keyhole surgery, which is amazing. If they suspect cancer they don't hang around. I was 72 at the time, and am coming up to 5 years since the operation. Good luck. 

Hi Blurry One, 

I was referred to gynaecology last July by another hospital consultant as I had unprovoked pulmonary emboli in both lungs, which can be a sign of cancer, and CT scans and a transvaginal scan at that time showed significant endometrial thickening and a 6.5 cm cyst on my ovary. To be honest, I had been bleeding a bit and had stupidly ignored it. I saw the gynaecologist on 30th August, she did a smear and tried to do a biopsy there and then, but couldn’t do it so she referred me for an urgent hysteroscopy as she wanted it done ‘the sooner the better’.

I received my first appointment for December. That appointment was cancelled on the morning I was due to have it done, it was rescheduled for January and that was also cancelled.  All due to staff pressures because of Covid. It was then scheduled for February, but was a failed attempt, as she still couldn’t get through my cervix. I finally had it done six weeks ago, this time under general anaesthetic. They removed three polyps and other tissue and sent it off for testing - I’m still waiting for the results, of the biopsy, but they did tell me that they would take 4-6 weeks.. They also inserted a Mirena coil to thin the lining of the uterus as this is a treatment for the thickening and I’m still bleeding now.

Like you, I had an early menopause - last period at 38, so 22 years ago as I’m 60. As I’m obese I’ve most likely had unopposed eostrogen for all that time as I wasn’t on HRT.

I know that the waiting is very difficult, but it’s difficult to know how quickly you may hear from them. I really hope the pressure has eased off them a little and you hear much sooner than me, and that it’s more straightforward for you. Perhaps it varies between area (I’m in Scotland).

Fingers crossed that you hear back very soon x

Thank you Nonentity, yes Covid...I think that is still having a massive impact on waiting times...I just need to be patient and trust in them I guess. It sounds like you've has a rough ride with things hope you get your results soon. Xx

Hi BlurryOne,

I wouldn't be too down hearted about waiting times. My husband has just been through two operations for bowel cancer, and Covid has  interfered with it very little. He was kept in high care for a couple of weeks simply because they had no room anywhere else. I really think they are doing everything to catch up from what I saw.xx

Hi sorry I wasn't around to welcome you. We all agree here the hard bit is waiting for appointments, then the results, then more tests..... We've all been there and know how you feel.

Once you've had the hysteroscopy and biopsy thing will be a little clearer to your team then you'll probably have a CT/MRI scan.

Come back and let us know how things go. If you want to ask any of us any questions please come back and do so. There's always someone around and we can offer a shoulder to cry on, a hand to hold or listen to a rant, we’re here for you.

It’s always helpful to others if you write a little something (or a lot) about yourself and how you came to find yourself here. Why not take a few moments to update your profile. It's always helpful for us to read if we want to ask you questions and you also won't end up repeating yourself. You can enter it into your profile (click on your username and select “Profile”) . You can amend or update it at any time. If you’re not sure what to write, just click on my username.

It might also be a good idea to download this booklet Understanding Womb (Endometrial) Cancer. I found it invaluable on my journey. 

Click on the link I’ve created to find out more information covering diagnosis and treatments for Womb cancer.

Sending welcoming hugs, Barb xx

Nothing yet? 

Finally got a letter today, appointment on the 11th May, it feels ages away but at least I can stop stressing so much for a while at least. Thank you all for the replies they are very much appreciated.