Hi,
Recent results of my hysteroscopy in November were that I have endormetrial hyperplasia. I had a phone call from my consultant which I was not expecting (thought it would just be a letter). I have anxiety and a call out of the blue had me in a panic. I am sure I did not hear everything correctly and felt rushed to make a decision. I have now received a letter confirming what was discussed to my GP, so that helped make things clearer.
7 years ago I had breast cancer treatment which was a lumpectomy, radiotherapy and then tamoxifen for 5 years. For nearly 5 years before cancer treatment I had a mirena coil fitted for heavy periods. It was fantastic and I had no periods while it was in. Due to the diagnosis I was told it must come out. Then I was on tamoxifen and apart from 1 period I never had another until about 8 months after I finished the tamoxifen. For a while they were just as regular as they had always been, heavy too. Then the gap between was longer and I thought ok I'm having a late menopause. I mentioned in passing about this to the GP and he referred me to the gynaecologist. That upset me because it meant I was officially back on the cancer trail again - my anxiety means I always suspect the worst. Of course I realise my GP was great and thank goodness he did refer me and didn't just brush me off.
My consultant had conferred within an MDT meeting with my breast cancer team as to how to proceed with treatment for the hyperplasia. They have decided that on balance I should have a Mirena coil back in to get my womb lining thin again, despite the usual advice to avoid this treatment if you have had breast cancer. Also, I am very overweight (morbidly obese category), such that I have been offered bariatric weight loss surgery. I do not want to take this option due to the risks involved. I have also at the moment refused the Mirena coil as I can't get out of my head how I had to immediately have it removed when I was diagnosed with breast cancer. I just don't know why I can't put my faith in the MDT when after all these are experts that have discussed my individual case. When I was first diagnosed I even had one family member ask if the cancer was caused by my obesity. Not helpful at all, and I had only lost my Dad 6 months prior to this so was in a very bad place in any case. I am so conflicted and I feel that I wouldn't be in this position if I had looked after myself more. I feel everything is my fault and that I am gambling with my life.
Has anyone on here been in a similar position?
Hi PinkSparkle and a warm welcome to our little group in the Online Community. I have read your bio so I know you've a long association with Macmillan and I know our lovely ladies can offer their support on this new journey you're facing.
Obesity is a factor in our cancer but not an over-riding contributary cause. I myself am only slightly overweight - it was the lack of ever had children and basically becoming an oestrogen factory was my problem as it feeds the cancer.
I can understand you not wanting to have bariatric surgery due to the risks involved. I would persist with questions to your consultant. In my case my team have been excellent, it must be so hard when you lose faith in them but you mustn't blame yourself, we're not all lfe gurus and frequently get things wrong.
Have a word with the Macmillan Support Helpline a ring on freephone 0808 808 00 00 and ask advice from the nursing team, they should be able to help.
Sending welcoming hugs your way, Barb xx
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