I've baffled the doctors somehow

FormerMember
FormerMember
  • 2 replies
  • 84 subscribers
  • 640 views

Hi all,

I had my first surgery in May 2021. It was a total hysterechtomy with everything out. Biopsy found the tumor to be a grade 3 so I started chemo in July and like alot of people I was allergic to the paclitaxol (don't know how it is spelt) and so I had  abraxane and carboplatin instead which I could tolerate. Then my chemo was postponed whilst I had a second surgery in October to remove another tumor which was found near my bowel. Luckily the biopsy revealed that one to be non cancerous. The relief was immense as I'm sure you can all understand. So I resumed chemo for another 4 cycles and finished in January this year. I am currently awaiting brachytherapy BUT when I had a scan after finishing chemo, the report for the scan says that the tumor they removed in October is stable. Hmm.... So now the doctors are baffled because none of us understand how a tumor that was removed can still be stable.  There shouldn't be anything there. So I've had another Pet CT scan and am awaiting the results of that and my brachytherapy consultant is understandably also awaiting my scan result before booking me in for treatment. 

Has anyone else been through something similar? Because I'm really struggling to stay positive right now. 

  • Hi Did they do a second biopsy on the tumour removed in October which was said to be non-cancerous then? I confess I don't understand. Unless the scan has picked up something unusual of the site of the tumour removal?

    Why not call the nurses here on the Macmillan Support Helpline on freephone 0808 808 00 00. They should be able to help.

    Big hugs, Barb xx


    Community Champion Badge

    Womb cancer forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    "Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett

  • FormerMember
    FormerMember in reply to MrsBJH

    Hi Barb, 

    Yes they did do a biopsy on the 2nd tumor that they removed in October. They were quick to take it out once they had found it because they didn't know if it was related to my first tumor or not. And so they had to act as if it was another grade 3 tumor till they knew different. Luckily that 2nd tumor was non cancerous so I could carry on as originally planned with chemo treatments. It's just that I seem to keep having treatments postponed whilst they check something out. Feels like I've been put on pause again. 

    Don't get me wrong I appreciate everything they are doing for me. All the different teams of doctors and nurses have been phenomenal and I couldn't have asked for more. I have been so, so positive throughout it all, but I'm having a struggle just now after being paused again. 

    Hope alls going well with you. 

    Siobhan.