Hi, I finally had a Hysteroscopy after a failed attempt in clinic due to cervical stenosis. They attempted to do it in theatre under spinal, but couldn’t do the spinal, so it was done under general anaesthetic. It was done as I had post menopausal bleeding and a scan showed my endometrium is 12mm - I’m post menopausal (22 years - now aged 60). I also had bilateral pulmonary emboli some months ago, which the doctors say can be a sign of an underlying cancer.
The surgeon removed three polyps, which have been sent to the lab, I believe along with other endometrial tissue, and she fitted a Mirena coil. (I’m obese, so have very likely had unopposed estrogen for many years, due to my premature menopause). This was done two weeks ago and I’m still bleeding. Is this usual? I’m presuming it’s the progestin thinning the endometrium - does that sound right?
I also have a 6.5cm cyst on my ovary, which they think may just be a dermoid cyst so that’s being monitored by scan - I had a small one diagnosed in the same ovary years ago. I had to cancel the first follow up transvaginal scan as it was for the day after the surgery. Then I got Covid two days after the surgery (triple jabbed thankfully- it was awful as it was!), so also had to cancel the rescheduled scan, waiting for another date. Does anyone know if will be able to have a transvaginal scan while still bleeding?
Incidentally, the surgeon diagnosed me with Lichen Sclerosus, which may explain the pain when they go near me with instruments.
I was told the biopsy results are taking 4-6 weeks, the weeks are dragging by.
Thanks for any input you can give.
Hi Nonentity, I know there can be some bleeding after a hysteroscopy - mine stopped after a day or two but I know it can go on for longer. I had mine under GA too as the first attempt failed. If you’re concerned, I’d suggest calling the surgeon’s secretary (the surgeon will likely have been a consultant or registrar) and asking. The gynae secretary should also be able to answer your question about the TVS scan. Hope you get your results soon - the waiting can one of the most difficult parts of this.
Hi Nonentity and a warm welcome to our group of lovely supportive ladies.
I also had a stenosed cervix so hated swabs back in the day. I also had to have my hysteroscopy done under anaesthetic - I had epidural even though I was terrified from what I'd read possible side effects - happily all went well.
If you're still bleeding I would advise contacting your CNS or if you have yet been assigned one your consultant's secretary, they'll be able to offer advice.
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Thanks. Yes the waiting is awful, this has been a long, drawn out process - Referred by another consultant to gynaecology in July, initial appointment with gynaecologist was 30th August, where she tried to do a simple biopsy on the same day as she said it needed to be done sooner rather than later, but couldn’t get through the cervix, then the hysteroscopy appointment was cancelled twice (December and January), then when it finally went ahead in February that failed too as they still couldn’t get through the cervix. Finally had it done two weeks ago under GA. I just want to know one way or another if I do actually have cancer now. It’s mentally as well as physically exhausting.
Bless you - have you managed to call anyone today about it?
Thanks for this. I think if the bleeding doesn’t stop over the weekend I’ll do as you suggest and perhaps phone the gynaecologist’s secretary. As you thought might be the case, I don’t have an assigned nurse as I’ve not actually been diagnosed with cancer as yet. The surgeon did make sure I know the reason they were doing the procedure was to check for malignancies, as had the gynaecologist who referring me, but I guess until the results of the biopsies are back I supposed they don’t say too much about the chances of it being cancer - or not. I’m actually quite calm about it all - no point in being anything else I guess as it won’t change anything about the outcome! Thanks again.
Just to let you know that usually the results go to a MDT (multi disciplinary team) meeting before patients are told, and in many hospitals these meetings only happen once a week. So, knowing when the meeting is can help as it may give you a better idea as to when you will hear. Though at least one lady here had a phone call from a CNS before the meeting had happened, I don’t think that is the most usual way.
Hi, No not yet. I will do it after the weekend if it’s still there. I’ve a feeling that it’s due to the progestin in the Mirena coil doing its job and thining the lining. I’m probably just taking it badly as It’s worse than the post menopausal bleeding I had been experiencing - more like a period and I didn’t expect that at to restart at 60! Especially after 22 years without having one. I really have nothing to complain about in the grand scheme of things. X
Nonentity, any extra stress can be difficult to cope with and it’s all valid. And you matter,
Oh that’s very interesting and helpful to know, thanks. That makes sense that they have formatted some kind of plan before speaking to you, if it’s indeed found to be cancer. That’s perhaps why they said it takes 4 to 6 weeks.
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